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Health Care for Adults with Developmental Delay

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1. Health Care for Adults with Developmental Delay

Health Care for Adults with Developmental Delay Health Care for Adults with Developmental Delay Toggle navigation Brain Head & Neck Chest Endocrine Abdomen Musculoskeletal Skin Infectious Disease Hematology & Oncology Cohorts Diagnostics Emergency Findings Procedures Prevention & Management Pharmacy Resuscitation Trauma Emergency Procedures Ultrasound Cardiovascular Emergencies Lung Emergencies Infectious Disease Pediatrics Neurologic Emergencies Skin Exposure Miscellaneous Abuse Cancer (...) Administration 4 Health Care for Adults with Developmental Delay Health Care for Adults with Developmental Delay Aka: Health Care for Adults with Developmental Delay , Developmental Disorder in Adults , Mental Retardation in Adults and their Medical Care , Mental Retardation , Intellectual Disability II. Definitions Examples: , Intellectual Disability, Significant functional deficits in 3 major life activities (e.g. self-care, language, learning) Previously defined as IQ <70 III. Epidemiology of those

2018 FP Notebook

2. Recommendations on screening for developmental delay

Recommendations on screening for developmental delay Guidelines CMAJ ©2016 8872147 Canada Inc. or its licensors CMAJ 1 CME Competing interests: None declared. This article has been peer reviewed. *The complete list of authors appears at the end of the article. The complete list of current members of the Canadian Task Force on Preventive Health Care is available at www.canadian taskforce.ca/members_eng. html Correspondence to: Canadian Task Force on Preventive Health Care, info (...) and on preschool screening for developmental problems. 16 Methods The Canadian Task Force on Preventive Health Care is an independent panel of primary care clin icians and methodologists that develops recom mendations on clinical preventive services in primary care (www.canadiantaskforce.ca). Recommendations on screening for developmental delay Canadian Task Force on Preventive Health Care* CMAJ Podcasts: author interview at https://soundcloud.com/cmajpodcasts/151437-guide • This guideline focuses

2016 CPG Infobase

3. WHO consolidated guideline on self-care interventions for health: sexual and reproductive health and rights

WHO consolidated guideline on self-care interventions for health: sexual and reproductive health and rights WHO Consolidated Guideline on Self-Care Interventions for Health Sexual and Reproductive Health and Rights WHO Consolidated Guideline on Self-Care Interventions for Health Sexual and Reproductive Health and Rights WHO consolidated guideline on self-care interventions for health: sexual and reproductive health and rights ISBN 978-92-4-155055-0 © World Health Organization 2019 Some rights (...) the licence shall be conducted in accordance with the mediation rules of the World Intellectual Property Organization. Suggested citation. WHO consolidated guideline on self-care interventions for health: sexual and reproductive health and rights. Geneva: World Health Organization; 2019. Licence: CC BY-NC-SA 3.0 IGO. Cataloguing-in-Publication (CIP) data. CIP data are available at http://apps.who.int/iris. Sales, rights and licensing. To purchase WHO publications, see http://apps.who.int/bookorders

2019 World Health Organisation Guidelines

4. Individualised funding interventions to improve health and social care outcomes for people with a disability

to health and social care outcomes. Objectives The objectives of this review are to: (1) examine the effectiveness of individualised funding interventions for adults with a lifelong disability (physical, sensory, intellectual, developmental or mental disorder), in terms of improvements in their health and social care outcomes when compared to a control group in receipt of funding from more traditional sources; and (2) to critically appraise and synthesise the qualitative evidence relating to stakeholder (...) adverse effects. There is less evidence of impact for physical functioning, unmet need and cost effectiveness. The review finds no differences 6 The Campbell Collaboration | www.campbellcollaboration.org between approaches for the Adult Social Care Outcomes Toolkit (ASCOT), self-perceived health and community participation. Recipients particularly value: flexibility, improved self-image and self-belief; more value for money; community integration; freedom to choose ‘who supports you; ‘social

2019 Campbell Collaboration

5. Transition to adult care for youth with special health care needs

together to develop transition care that is effective in fostering health-promoting behaviours and in enhancing the long-term quality of the young adult’s life . The Canadian Paediatric Society supports the provision of developmentally appropriate care for youth with special health care needs as they move into the adult-oriented health care system. The present statement provides the background, framework and tools for paediatricians, family physicians, other health care professionals, parents and youth (...) be partially explained by significant differences between the mandate and functioning of paediatric and adult services. Paediatric care is family focused, relies on developmentally appropriate care with significant parental involvement in decision-making and prescribes care within a multidisciplinary team. Adult care is patient focused and investigational, requiring autonomous, independent consumer skills without many interdisciplinary resources . Adult health care differs significantly from paediatric

2012 Canadian Paediatric Society

6. Challenges faced by HIV-positive youth transitioning to adult care and evidence-based practices to address them

system. Youth in transition must also confront the possibility of discrimination and stigma when disclosing their HIV status to new providers and other patients (22). Research has found that many young people living with HIV feel that 18 is too young to transfer to adult care (23). Furthermore, this transition occurs at a crucial developmental stage, when inadequate care and support may negatively affect health outcomes. Youth who have acquired HIV perinatally may be especially vulnerable (...) to fully evaluate the protocol (4). Boudreau et al. (2012) suggest that health care providers can meet the needs of youth living with HIV by: connecting them with adult medical benefits and providers using their chosen methods of communication (e.g., cell phones, e-mail) developing individualized medication adherence strategies addressing sexual health and family planning issues providing developmentally appropriate prevention tools (6). Health care providers should also focus on a youth’s strengths

2018 Ontario HIV Treatment Network

7. An update to the Greig Health Record: Preventive health care visits for children and adolescents aged 6 to 17 years ? Technical report

to help adolescents understand both the scope and limits of patient confidentiality and explain that rules of confidentiality cannot cover cases of homicidal or suicidal ideation and emotional, physical or sexual abuse. Care of the adolescent involves a process of developing autonomy and responsibility for personal health care issues and transitioning from child-centred to adult-oriented health care. Both processes become particularly important when adolescents have special needs. The CPS provides (...) or 10 years of age. In one recent Canadian survey, most adolescents reported that they have gambled at least once. Adolescents are two to four times more likely to have gambling problems than adults. Adolescent tendencies for risky behaviours can make them more vulnerable to developing a gambling problem. Depression, loss, abuse, impulsivity, antisocial traits and learning disabilities also increase the risk as well. Health care providers are recommended to screen for problem gambling as well

2016 Canadian Paediatric Society

8. The Pro-Parenting Study: Helping Parents Reduce Behavior Problems in Preschool Children With Developmental Delay

studies (100). Please remove one or more studies before adding more. The Pro-Parenting Study: Helping Parents Reduce Behavior Problems in Preschool Children With Developmental Delay The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. of clinical studies and talk to your health care provider before participating. Read our for details. ClinicalTrials.gov (...) The Pro-Parenting Study: Helping Parents Reduce Behavior Problems in Preschool Children With Developmental Delay The Pro-Parenting Study: Helping Parents Reduce Behavior Problems in Preschool Children With Developmental Delay - Full Text View - ClinicalTrials.gov Hide glossary Glossary Study record managers: refer to the if submitting registration or results information. Search for terms x × Study Record Detail Saved Studies Save this study Warning You have reached the maximum number of saved

2018 Clinical Trials

9. Paediatric European Network for Treatment of AIDS (PENTA) guidelines for treatment of paediatric HIV-1 infection 2015: optimizing health in preparation for adult life

Paediatric European Network for Treatment of AIDS (PENTA) guidelines for treatment of paediatric HIV-1 infection 2015: optimizing health in preparation for adult life Paediatric European Network for Treatment of AIDS (PENTA) guidelines for treatment of paediatric HIV-1 infection 2015: optimizing health in preparation for adult life ABamford,*ATurkova,*HLyall, CFoster, NKlein, DBastiaans, DBurger, SBernardi, KButler, EChiappini, 1 2 3 3 4 5 5 6 7 8 P Clayden, 9 M Della Negra, 10 V Giacomet, 11 C (...) of short-term morbidity and mortality to optimizing health status for adult life and minimizing the impact of chronic HIV infection on immune system development and health in general. Additionally, there is a greater need for increased awareness and minimization of long-term drug toxicity. The main updates to the previous guidelines include: an increase in the number of indications for antiretroviral therapy (ART) at all ages (higher CD4 thresholds for consideration of ART initiation and additional

2018 The Children's HIV Association

10. Mindfulness-based stress reduction (MBSR) for improving health, quality of life and social functioning in adults

Mindfulness-based stress reduction (MBSR) for improving health, quality of life and social functioning in adults A Campbell Systematic Review 2017:11 Social Welfare Coordinating Group Michael de Vibe, Arild Bjørndal, Sabina Fattah, Gunvor M Dyrdal, Even Halland, Emily E Tanner-Smith Mindfulness-based stress reduction (MBSR) for improving health, quality of life and social functioning in adults: a systematic review and meta-analysis Published: November 2017 Search executed: November 2015The (...) Campbell Library comprises: • Systematic reviews (titles, protocols and reviews) • Policies and Guidelines Series • Methods Series Go to the library to download these resources, at: www.campbellcollaboration.org/library/ Better evidence for a better world Colophon Title Mindfulness-based stress reduction (MBSR) for improving health, quality of life and social functioning in adults: a systematic review and meta-analysis Authors Michael de Vibe, Norwegian Public Health Institute, Oslo, Norway Arild

2017 Campbell Collaboration

11. Care of Adults with Neurofibromatosis Type 1

younger than the non-NF1 population, but there were no age differences observed for epilepsy. The study also Care of adult NF1 | STEWART et al ACMG PRACTICE GUIDELINE GENETICS in MEDICINE | Volume 20 | Number 7 | July 2018 677found significantly higher odds of an adult NF1 health- insurance claim for Parkinson’s disease and multiple sclerosis; however, the number of observations was small and there is a needforreplication. 106 A clinic-based study ofheadache in115 adults with NF1 found that migraine (...) Care of Adults with Neurofibromatosis Type 1 Care of adults with neurofibromatosis type 1: a clinical practice resource of the American College of Medical Genetics and Genomics (ACMG) Douglas R. Stewart, MD 1 , Bruce R. Korf, MD, Ph.D 2 , Katherine L. Nathanson, MD 3,4 , David A. Stevenson, MD 5 and Kaleb Yohay, MD 6 Purpose: Neurofibromatosis type 1 (NF1) is an autosomal dominant disorder that is caused by a heterozygous loss-of- function variant in the tumor suppressor gene NF1; it affects ~1

2018 American College of Medical Genetics and Genomics

12. Screening for disruptive behaviour problems in preschool children in primary health care settings

to a challenging behaviour may elicit opportunities for intervention. For example, disruptive behaviour and anxiety may be a response to adult expectations that are too high for a child’s cognitive abilities, particularly in a context where a child may have a global developmental delay . Behavioural patterns can change as parental figures or settings are altered, with behaviours differing across settings: between home and child care, for example. Exploring such changes and differences can inform (...) defiant disorder: Relative significance of attachment and behavioral variables. J Abnorm Child Psychol 1995;23(4):487–507. Crnic KA, Hoffman C, Gaze C, Edelbrock C. Understanding the emergence of behavior problems in young children with developmental delays. Infants Young Child 2004;17(3):223–35. Foy JM; American Academy of Pediatrics Task Force on Mental Health. Enhancing pediatric mental health care: Report from the American Academy of Pediatrics task force on mental health. Introduction. Pediatrics

2017 Canadian Paediatric Society

13. Best Practices for Pain Management in Infants, Children, Adolescents, and Individuals with Special Health Care Needs

Best Practices for Pain Management in Infants, Children, Adolescents, and Individuals with Special Health Care Needs AMERICAN ACADEMY OF PEDIATRIC DENTISTRY RECOMMENDATIONS: BEST PRACTICES 321 Purpose The American Academy of Pediatric Dentistry ( AAPD) recognizes that infants, children, adolescents, and individuals with special health care needs can and do experience pain due to dental/orofacial injury, infection, and dental procedures, and that inadequate pain management may have significant (...) nervous system. FDA: Food and Drug Administration. IV: Intravenous. NSAIDs: Nonsteroidal anti-inflammatory drugs. VAS: Visual analogue scale. Pain Management in Infants, Children, Adolescents and Individuals with Special Health Care Needs322 RECOMMENDATIONS: BEST PRACTICES REFERENCE MANUAL V 40 / NO 6 18 / 19 the area of tissue damage, and allodynia, which refers to pain perception following innocuous stimuli such as light touch, are characteristics of central sensitization. 13 Pain modulation

2018 American Academy of Pediatric Dentistry

14. Complex regional pain syndrome in adults. UK guidelines for diagnosis, referral and management in primary and secondary care 2018 (2nd edition)

Complex regional pain syndrome in adults. UK guidelines for diagnosis, referral and management in primary and secondary care 2018 (2nd edition) Complex regional pain syndrome in adults UK guidelines for diagnosis, referral and management in primary and secondary care 2018 2nd edition 2nd editionComplex regional pain syndrome in adults These guidelines were developed by a panel of experts with support from, representation and endorsement by the Royal College of General Practitioners, the Royal (...) physicians in over 30 medical specialties with education, training and support throughout their careers. As an independent charity representing over 35,000 fellows and members worldwide, the RCP advises and works with government, patients, allied healthcare professionals and the public to improve health and healthcare. Citation for this document Goebel A, Barker CH, Turner-Stokes L et al. Complex regional pain syndrome in adults: UK guidelines for diagnosis, referral and management in primary

2018 British Society of Rehabilitation Medicine

15. Health Care for Adults with Developmental Delay

Health Care for Adults with Developmental Delay Health Care for Adults with Developmental Delay Toggle navigation Brain Head & Neck Chest Endocrine Abdomen Musculoskeletal Skin Infectious Disease Hematology & Oncology Cohorts Diagnostics Emergency Findings Procedures Prevention & Management Pharmacy Resuscitation Trauma Emergency Procedures Ultrasound Cardiovascular Emergencies Lung Emergencies Infectious Disease Pediatrics Neurologic Emergencies Skin Exposure Miscellaneous Abuse Cancer (...) Administration 4 Health Care for Adults with Developmental Delay Health Care for Adults with Developmental Delay Aka: Health Care for Adults with Developmental Delay , Developmental Disorder in Adults , Mental Retardation in Adults and their Medical Care , Mental Retardation , Intellectual Disability II. Definitions Examples: , Intellectual Disability, Significant functional deficits in 3 major life activities (e.g. self-care, language, learning) Previously defined as IQ <70 III. Epidemiology of those

2015 FP Notebook

16. Tips for caring for persons with developmental disabilities

, communication techniques, approaches to preventive care and acute illnesses, and end-of-life planning. It also includes a discussion on the medical versus neurodiversity models of diversity, asserting that accepting patients as they are is preferable to trying to "normalize" them: The goal of health care for patients with developmental disabilities is to improve their well-being, function, and participation in family and community. It is not always necessary or desirable to try to change a person's traits (...) health care disparities between them and the non-disabled population. A found that, compared with persons with no disability, persons with a disability (and/or their supporters) were more likely to report their health status as being "fair" or "poor," had more hospital and Emergency Department (ED) visits, and had more problems "getting needed care." Disabled persons reported more frequent "delayed treatment[s]," problem[s] getting care," and "problem[s] seeing a specialist." A study from

2018 The AFP Community Blog

17. Oral Health Care for the Pregnant Adolescent

Oral Health Care for the Pregnant Adolescent AMERICAN ACADEMY OF PEDIATRIC DENTISTRY RECOMMENDATIONS: BEST PRACTICES 229 Purpose The American Academy of Pediatric Dentistry ( AAPD), as the oral health advocate for infants, children, adolescents, and persons with special needs, recognizes that adolescent preg- nancy remains a significant social and health issue in the U.S. These recommendations are intended to address management of oral health care particular to the pregnant adolescent rather (...) than provide specific treatment recommendations for oral conditions. Methods Recommendations on oral health care for the pregnant adolescent were developed by the Council on Clinical Affairs Committee on the Adolescent and adopted in 2007. This document is an update of the previous version, revised in 2012. The revision included a search of the PubMed ® / MEDLINE database using the terms: teen pregnancy AND dental and adolescent pregnancy. This search yielded 209 articles that met the defined

2016 American Academy of Pediatric Dentistry

18. Concerns Regarding Social Media and Health Issues in Adolescents and Young Adults

Concerns Regarding Social Media and Health Issues in Adolescents and Young Adults Concerns Regarding Social Media and Health Issues in Adolescents and Young Adults - ACOG Menu ▼ Concerns Regarding Social Media and Health Issues in Adolescents and Young Adults Page Navigation ▼ Number 653, February 2016 (Reaffirmed 2018) Committee on Adolescent Health Care This Committee Opinion was developed by the American College of Obstetricians and Gynecologists’ Committee on Adolescent Health Care. Member (...) contributors included Meredith Loveless, MD. This document reflects emerging clinical and scientific advances as of the date issued and is subject to change. The information should not be construed as dictating an exclusive course of treatment or procedure to be followed. Concerns Regarding Social Media and Health Issues in Adolescents and Young Adults ABSTRACT: Although there are many positive aspects of social media for adolescents and young adults, there are also risks. Adolescence is a time

2016 American College of Obstetricians and Gynecologists

19. Transitions of Care for Children with Special Health Care Needs

of adults for which they are less prepared. Therefore, at some point, most pediatric patients should and do move into the adult care system. An effective transition process from a pediatric to an adult health system should ensure continuity of developmental and age-appropriate care. In 2002 the American Academy of Pediatrics (AAP), the American Academy of Family Physicians (AAFP), and the American College of Physicians (ACP) coauthored a consensus statement: “The goal of transition in health care (...) for young adults with special health care needs is to maximize lifelong functioning and potential through the provision of high-quality, developmentally appropriate health care services that continue uninterrupted as the individual moves from adolescence to adulthood.” 1 This process can be challenging, particularly for children and youth with special health care needs (CSHCN), defined as individuals having or being at risk of “a chronic physical, developmental, behavioral, or emotional condition

2014 Effective Health Care Program (AHRQ)

20. Clinical Guidelines and Integrated Care Pathways for the Oral Health Care of People with Learning Disabilities

2.1 User / Carer Barriers 7 2.2 Professional Service Providers 8 2.3 Barriers to Accessing Oral Care 9 2.4 Cultural Issues 10 3 Improving oral health through clinical guidelines and integrated care pathways 13 3.1 Oral Health Care of the Pre-school and School Age Child 13 3.2 The Transition Stage 19 3.3 Adults and Older People 21 3.4 Communicating with People who have Learning Disabilities 26 3.5 Management of Specific Oral Complications 29 3.6 Use of Sedation for People with Learning Disabilities (...) in the early stages is crucial and determines good oral health in later years, but they need support and guidance from the specialist dental team. Anne is now an adult and in full time residential care. She is profoundly disabled with little speech, but she does have the great ability to bring a sense of happiness to everyone she meets. She would be unlikely to initiate or maintain an oral care regimen on her own and it is thanks to the help of many people over the years, that her oral health is good today

2012 Royal College of Surgeons of England

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