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Health Care for Adults with Developmental Delay

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1. Organisation of mental health care for adults in Belgium

Organisation of mental health care for adults in Belgium 2019 www.kce.fgov.be KCE REPORT 318 ORGANISATION OF MENTAL HEALTH CARE FOR ADULTS IN BELGIUM 2019 www.kce.fgov.be 1 Crésam, 2 KU Leuven, 3 Vlaamse Vereniging Geestelijke Gezondheid, 4 Sciensano, 5 Université catholique de Louvain KCE REPORT 318 HEALTH SERVICES RESEARCH ORGANISATION OF MENTAL HEALTH CARE FOR ADULTS IN BELGIUM KCE EDITORS: PATRIEK MISTIAEN, JUSTIEN CORNELIS, JENS DETOLLENAERE, STEPHAN DEVRIESE, MARIA ISABEL FARFAN, CÉLINE (...) RICOUR WITH CONTRIBUTIONS OF BONTEMPS CHRISTIANE 1 , BRUFFAERTS RONNY 2 , DE COEN MARLIEN 3 , GISLE LYDIA 4 , HERMANS KIRSTEN 2 , LAGUESSE RENAUD 1 , LAMBERT MARIE 1 , LORANT VINCENT 5 , NEYENS INGE 2 , NICAISE PABLO 5 , SMITH PIERRE 5 , THUNUS SOPHIE 5 , VAN AUDENHOVE CHANTAL 2 , VAN NUFFEL RIK 3 , VAN SPEYBROECK JAN 3 , WALKER CAROLE 5 COLOPHON Title: Organisation of mental health care for adults in Belgium Editors: Patriek Mistiaen (KCE), Justien Cornelis (KCE), Jens Detollenaere (KCE), Stephan

2019 Belgian Health Care Knowledge Centre

2. Health Care for Adults with Developmental Delay

Health Care for Adults with Developmental Delay Health Care for Adults with Developmental Delay Toggle navigation Brain Head & Neck Chest Endocrine Abdomen Musculoskeletal Skin Infectious Disease Hematology & Oncology Cohorts Diagnostics Emergency Findings Procedures Prevention & Management Pharmacy Resuscitation Trauma Emergency Procedures Ultrasound Cardiovascular Emergencies Lung Emergencies Infectious Disease Pediatrics Neurologic Emergencies Skin Exposure Miscellaneous Abuse Cancer (...) Administration 4 Health Care for Adults with Developmental Delay Health Care for Adults with Developmental Delay Aka: Health Care for Adults with Developmental Delay , Developmental Disorder in Adults , Mental Retardation in Adults and their Medical Care , Mental Retardation , Intellectual Disability II. Definitions Examples: , Intellectual Disability, Significant functional deficits in 3 major life activities (e.g. self-care, language, learning) Previously defined as IQ <70 III. Epidemiology of those

2018 FP Notebook

3. AACE/ACE Guidelines for Management of Growth Hormone Deficiency in Adults and Patients Transitioning from Pediatric to Adult Care

SHOULD PEDIATRIC PATIENTS WITH CO-GHD BE TRANSITIONED TO ADULT-CARE SERVICES? Human development significantly changes during the transition age, arbitrarily defined as starting in late puberty and ending with full adult maturation when peak bone mass is achieved (84). Teenagers undergo a period of physical growth, sexual maturation, and cognitive devel- opment, and form their own identities to achieve indepen- dence from their parents. Navigating the health care of young adults with CO-GHD becomes (...) AACE/ACE Guidelines for Management of Growth Hormone Deficiency in Adults and Patients Transitioning from Pediatric to Adult Care ENDOCRINE PRACTICE Vol 25 No. 11 November 2019 1191 Copyright © 2019 AACE AACE 2019 Guidelines AMERICAN ASSOCIATION OF CLINICAL ENDOCRINOLOGISTS AND AMERICAN COLLEGE OF ENDOCRINOLOGY GUIDELINES FOR MANAGEMENT OF GROWTH HORMONE DEFICIENCY IN ADULTS AND PATIENTS TRANSITIONING FROM PEDIATRIC TO ADULT CARE 2019 AACE GROWTH HORMONE TASK FORCE Kevin C. J. Yuen, MD, FRCP

2019 American Association of Clinical Endocrinologists

4. Recommendations on screening for developmental delay

Recommendations on screening for developmental delay Guidelines CMAJ ©2016 8872147 Canada Inc. or its licensors CMAJ 1 CME Competing interests: None declared. This article has been peer reviewed. *The complete list of authors appears at the end of the article. The complete list of current members of the Canadian Task Force on Preventive Health Care is available at www.canadian taskforce.ca/members_eng. html Correspondence to: Canadian Task Force on Preventive Health Care, info (...) and on preschool screening for developmental problems. 16 Methods The Canadian Task Force on Preventive Health Care is an independent panel of primary care clin icians and methodologists that develops recom mendations on clinical preventive services in primary care (www.canadiantaskforce.ca). Recommendations on screening for developmental delay Canadian Task Force on Preventive Health Care* CMAJ Podcasts: author interview at https://soundcloud.com/cmajpodcasts/151437-guide • This guideline focuses

2016 CPG Infobase

5. Challenges faced by HIV-positive youth transitioning to adult care and evidence-based practices to address them

system. Youth in transition must also confront the possibility of discrimination and stigma when disclosing their HIV status to new providers and other patients (22). Research has found that many young people living with HIV feel that 18 is too young to transfer to adult care (23). Furthermore, this transition occurs at a crucial developmental stage, when inadequate care and support may negatively affect health outcomes. Youth who have acquired HIV perinatally may be especially vulnerable (...) to fully evaluate the protocol (4). Boudreau et al. (2012) suggest that health care providers can meet the needs of youth living with HIV by: connecting them with adult medical benefits and providers using their chosen methods of communication (e.g., cell phones, e-mail) developing individualized medication adherence strategies addressing sexual health and family planning issues providing developmentally appropriate prevention tools (6). Health care providers should also focus on a youth’s strengths

2018 Ontario HIV Treatment Network

6. Paediatric European Network for Treatment of AIDS (PENTA) guidelines for treatment of paediatric HIV-1 infection 2015: optimizing health in preparation for adult life

Paediatric European Network for Treatment of AIDS (PENTA) guidelines for treatment of paediatric HIV-1 infection 2015: optimizing health in preparation for adult life Paediatric European Network for Treatment of AIDS (PENTA) guidelines for treatment of paediatric HIV-1 infection 2015: optimizing health in preparation for adult life ABamford,*ATurkova,*HLyall, CFoster, NKlein, DBastiaans, DBurger, SBernardi, KButler, EChiappini, 1 2 3 3 4 5 5 6 7 8 P Clayden, 9 M Della Negra, 10 V Giacomet, 11 C (...) of short-term morbidity and mortality to optimizing health status for adult life and minimizing the impact of chronic HIV infection on immune system development and health in general. Additionally, there is a greater need for increased awareness and minimization of long-term drug toxicity. The main updates to the previous guidelines include: an increase in the number of indications for antiretroviral therapy (ART) at all ages (higher CD4 thresholds for consideration of ART initiation and additional

2018 The Children's HIV Association

7. Transition to adult care for youth with special health care needs

together to develop transition care that is effective in fostering health-promoting behaviours and in enhancing the long-term quality of the young adult’s life . The Canadian Paediatric Society supports the provision of developmentally appropriate care for youth with special health care needs as they move into the adult-oriented health care system. The present statement provides the background, framework and tools for paediatricians, family physicians, other health care professionals, parents and youth (...) be partially explained by significant differences between the mandate and functioning of paediatric and adult services. Paediatric care is family focused, relies on developmentally appropriate care with significant parental involvement in decision-making and prescribes care within a multidisciplinary team. Adult care is patient focused and investigational, requiring autonomous, independent consumer skills without many interdisciplinary resources . Adult health care differs significantly from paediatric

2012 Canadian Paediatric Society

8. WHO consolidated guideline on self-care interventions for health: sexual and reproductive health and rights

WHO consolidated guideline on self-care interventions for health: sexual and reproductive health and rights WHO Consolidated Guideline on Self-Care Interventions for Health Sexual and Reproductive Health and Rights WHO Consolidated Guideline on Self-Care Interventions for Health Sexual and Reproductive Health and Rights WHO consolidated guideline on self-care interventions for health: sexual and reproductive health and rights ISBN 978-92-4-155055-0 © World Health Organization 2019 Some rights (...) the licence shall be conducted in accordance with the mediation rules of the World Intellectual Property Organization. Suggested citation. WHO consolidated guideline on self-care interventions for health: sexual and reproductive health and rights. Geneva: World Health Organization; 2019. Licence: CC BY-NC-SA 3.0 IGO. Cataloguing-in-Publication (CIP) data. CIP data are available at http://apps.who.int/iris. Sales, rights and licensing. To purchase WHO publications, see http://apps.who.int/bookorders

2019 World Health Organisation Guidelines

9. Care of Adults with Neurofibromatosis Type 1

younger than the non-NF1 population, but there were no age differences observed for epilepsy. The study also Care of adult NF1 | STEWART et al ACMG PRACTICE GUIDELINE GENETICS in MEDICINE | Volume 20 | Number 7 | July 2018 677found significantly higher odds of an adult NF1 health- insurance claim for Parkinson’s disease and multiple sclerosis; however, the number of observations was small and there is a needforreplication. 106 A clinic-based study ofheadache in115 adults with NF1 found that migraine (...) Care of Adults with Neurofibromatosis Type 1 Care of adults with neurofibromatosis type 1: a clinical practice resource of the American College of Medical Genetics and Genomics (ACMG) Douglas R. Stewart, MD 1 , Bruce R. Korf, MD, Ph.D 2 , Katherine L. Nathanson, MD 3,4 , David A. Stevenson, MD 5 and Kaleb Yohay, MD 6 Purpose: Neurofibromatosis type 1 (NF1) is an autosomal dominant disorder that is caused by a heterozygous loss-of- function variant in the tumor suppressor gene NF1; it affects ~1

2018 American College of Medical Genetics and Genomics

10. Mindfulness?based stress reduction (MBSR) for improving health, quality of life and social functioning in adults: a systematic review and meta?analysis Full Text available with Trip Pro

2012 Normal adults ACS, CFQ, DERS, PSWO, RRS, SAES‐Ex, SAES‐In, SCS, FFMQ 56 27 84 Non‐ITT Rosenkranz 2013 Normal adults GSI, Cortisol AUC, Flare size, MSC, TSST Cortisol 4 49 27 33 80 Non‐ITT Schmidt 2011 Fibromyalgia STAI, CES‐D, HRQOL, FIQ, GCQ, PPS affective, PPS sensory, PSQI, FMI 2 177 27 100 ITT SeyedAlinaghi 2012 HIV SCL‐90, CD4, MSCL 3, 6, 9, 12 173 27 31 Non‐ITT Shapiro 1998 Health care prof. STAI state, STAI trait, GSI, Empathy, INSPIRIT 18 18 56 Non‐ITT Shapiro 2005 Sudents BSI, MBI (...) Mindfulness?based stress reduction (MBSR) for improving health, quality of life and social functioning in adults: a systematic review and meta?analysis Mindfulness‐based stress reduction (MBSR) for improving health, quality of life and social functioning in adults: a systematic review and meta‐analysis - Vibe - 2017 - Campbell Systematic Reviews - Wiley Online Library By continuing to browse this site, you agree to its use of cookies as described in our . Search within Search term Search term

2017 Campbell Collaboration

11. Individualized funding interventions to improve health and social care outcomes for people with a disability: A mixed?methods systematic review

, there is now a need for a systematic review of these models across a spectrum of disabilities, in order to assess their effectiveness in relation to health and social care outcomes. 2.2 Objectives The objectives of this review are to: (a) examine the effectiveness of individualized funding interventions for adults with a lifelong disability (physical, sensory, intellectual, developmental or mental disorder), in terms of improvements in their health and social care outcomes when compared to a control group (...) a personal budget, with any form or level of lifelong disability (physical, sensory, intellectual or developmental disability, level of mental health problem, disorder or illness, or dementia), residing in any country and any type of residential setting (own home, group home, residential care setting, nursing home, hospital, institution). Studies in any language were included. Minors and older people without a lifelong disability (i.e., no disability in 10 years prior to reaching the age of 65) were

2019 Campbell Collaboration

12. Complex regional pain syndrome in adults. UK guidelines for diagnosis, referral and management in primary and secondary care 2018 (2nd edition)

Complex regional pain syndrome in adults. UK guidelines for diagnosis, referral and management in primary and secondary care 2018 (2nd edition) Complex regional pain syndrome in adults UK guidelines for diagnosis, referral and management in primary and secondary care 2018 2nd edition 2nd editionComplex regional pain syndrome in adults These guidelines were developed by a panel of experts with support from, representation and endorsement by the Royal College of General Practitioners, the Royal (...) physicians in over 30 medical specialties with education, training and support throughout their careers. As an independent charity representing over 35,000 fellows and members worldwide, the RCP advises and works with government, patients, allied healthcare professionals and the public to improve health and healthcare. Citation for this document Goebel A, Barker CH, Turner-Stokes L et al. Complex regional pain syndrome in adults: UK guidelines for diagnosis, referral and management in primary

2018 British Society of Rehabilitation Medicine

13. UK guideline on transition of adolescent and young persons with chronic digestive diseases from paediatric to adult care

January 2017 To cite: Brooks AJ, Smith PJ, Cohen R, et al. Gut Published Online First: [please include Day Month Year] doi:10.1136/gutjnl- 2016-313000 ABSTRACT The risks of poor transition include delayed and inappropriate transfer that can result in disengagement with healthcare. Structured transition care can improve control of chronic digestive diseases and long-term health-related outcomes. These are the ?rst nationally developed guidelines on the transition of adolescent and young persons (AYP (...) as they progress from paediatric health services through to adult care, for clinicians and other health professionals in gastroenterology and hepatology. 2. Guideline development group membership and stakeholder involvement Membership of the guideline development group included paediatric and adult gastroenterologists and hepatologists, spe- cialist nurses and dieticians who were selected after an open call for participation was published in the BSG newsletter. The group also included patient and parent

2017 British Society of Gastroenterology

14. The Pro-Parenting Study: Helping Parents Reduce Behavior Problems in Preschool Children With Developmental Delay

studies (100). Please remove one or more studies before adding more. The Pro-Parenting Study: Helping Parents Reduce Behavior Problems in Preschool Children With Developmental Delay The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. of clinical studies and talk to your health care provider before participating. Read our for details. ClinicalTrials.gov (...) The Pro-Parenting Study: Helping Parents Reduce Behavior Problems in Preschool Children With Developmental Delay The Pro-Parenting Study: Helping Parents Reduce Behavior Problems in Preschool Children With Developmental Delay - Full Text View - ClinicalTrials.gov Hide glossary Glossary Study record managers: refer to the if submitting registration or results information. Search for terms x × Study Record Detail Saved Studies Save this study Warning You have reached the maximum number of saved

2018 Clinical Trials

15. Genome-Wide Sequencing for Unexplained Developmental Disabilities or Multiple Congenital Anomalies

Health Technol Assess Ser [Internet]. 2020 Mar;20(11):1–178. Available from: https://www.hqontario.ca/evidence-to-improve- care/health-technology-assessment/reviews-and-recommendations/genome-wide-sequencing-for- unexplained-developmental-disabilities-and-multiple-congenital-anomalies March 2020 Ontario Health Technology Assessment Series; Vol. 20: No. 11, pp. 1–178, March 2020 3 ABSTRACT Background People with unexplained developmental disabilities or multiple congenital anomalies might have had (...) developmental disabilities or multiple congenital anomalies. BACKGROUND Health Condition Developmental disability includes developmental delay and intellectual disability. Developmental delay is a term used exclusively for children younger than 5 years of age whose development is substantially behind expected development in at least two of the following: gross motor skills, fine motor/vision, speech and language, cognition, and personal/social activities of daily living. 1,2 Approximately 1% of Canadians

2020 Health Quality Ontario

16. Best Practices for Pain Management in Infants, Children, Adolescents, and Individuals with Special Health Care Needs

Best Practices for Pain Management in Infants, Children, Adolescents, and Individuals with Special Health Care Needs AMERICAN ACADEMY OF PEDIATRIC DENTISTRY RECOMMENDATIONS: BEST PRACTICES 321 Purpose The American Academy of Pediatric Dentistry ( AAPD) recognizes that infants, children, adolescents, and individuals with special health care needs can and do experience pain due to dental/orofacial injury, infection, and dental procedures, and that inadequate pain management may have significant (...) nervous system. FDA: Food and Drug Administration. IV: Intravenous. NSAIDs: Nonsteroidal anti-inflammatory drugs. VAS: Visual analogue scale. Pain Management in Infants, Children, Adolescents and Individuals with Special Health Care Needs322 RECOMMENDATIONS: BEST PRACTICES REFERENCE MANUAL V 40 / NO 6 18 / 19 the area of tissue damage, and allodynia, which refers to pain perception following innocuous stimuli such as light touch, are characteristics of central sensitization. 13 Pain modulation

2018 American Academy of Pediatric Dentistry

17. Screening for disruptive behaviour problems in preschool children in primary health care settings

to a challenging behaviour may elicit opportunities for intervention. For example, disruptive behaviour and anxiety may be a response to adult expectations that are too high for a child’s cognitive abilities, particularly in a context where a child may have a global developmental delay . Behavioural patterns can change as parental figures or settings are altered, with behaviours differing across settings: between home and child care, for example. Exploring such changes and differences can inform (...) defiant disorder: Relative significance of attachment and behavioral variables. J Abnorm Child Psychol 1995;23(4):487–507. Crnic KA, Hoffman C, Gaze C, Edelbrock C. Understanding the emergence of behavior problems in young children with developmental delays. Infants Young Child 2004;17(3):223–35. Foy JM; American Academy of Pediatrics Task Force on Mental Health. Enhancing pediatric mental health care: Report from the American Academy of Pediatrics task force on mental health. Introduction. Pediatrics

2017 Canadian Paediatric Society

18. Health Care for Adults with Developmental Delay

Health Care for Adults with Developmental Delay Health Care for Adults with Developmental Delay Toggle navigation Brain Head & Neck Chest Endocrine Abdomen Musculoskeletal Skin Infectious Disease Hematology & Oncology Cohorts Diagnostics Emergency Findings Procedures Prevention & Management Pharmacy Resuscitation Trauma Emergency Procedures Ultrasound Cardiovascular Emergencies Lung Emergencies Infectious Disease Pediatrics Neurologic Emergencies Skin Exposure Miscellaneous Abuse Cancer (...) Administration 4 Health Care for Adults with Developmental Delay Health Care for Adults with Developmental Delay Aka: Health Care for Adults with Developmental Delay , Developmental Disorder in Adults , Mental Retardation in Adults and their Medical Care , Mental Retardation , Intellectual Disability II. Definitions Examples: , Intellectual Disability, Significant functional deficits in 3 major life activities (e.g. self-care, language, learning) Previously defined as IQ <70 III. Epidemiology of those

2015 FP Notebook

19. An update to the Greig Health Record: Preventive health care visits for children and adolescents aged 6 to 17 years ? Technical report

to help adolescents understand both the scope and limits of patient confidentiality and explain that rules of confidentiality cannot cover cases of homicidal or suicidal ideation and emotional, physical or sexual abuse. Care of the adolescent involves a process of developing autonomy and responsibility for personal health care issues and transitioning from child-centred to adult-oriented health care. Both processes become particularly important when adolescents have special needs. The CPS provides (...) or 10 years of age. In one recent Canadian survey, most adolescents reported that they have gambled at least once. Adolescents are two to four times more likely to have gambling problems than adults. Adolescent tendencies for risky behaviours can make them more vulnerable to developing a gambling problem. Depression, loss, abuse, impulsivity, antisocial traits and learning disabilities also increase the risk as well. Health care providers are recommended to screen for problem gambling as well

2016 Canadian Paediatric Society

20. Delirium, Dementia, and Depression in Older Adults: Assessment and Care, Second Edition

: Assessment and Care (2nd ed.) Toronto, ON: Registered Nurses’ Association of Ontario. This work is funded by the Ontario Ministry of Health and Long-Term Care. All work produced by RNAO is editorially independent from its funding source. Contact Information Registered Nurses’ Association of Ontario 158 Pearl Street, Toronto, Ontario M5H 1L3 Website: www.RNAO.ca/bpgDelirium, Dementia, and Depression in Older Adults: Assessment and Care Second EditionGreetings from Doris Grinspun, Chief Executive Officer (...) , Registered Nurses’ Association of Ontario The Registered Nurses’ Association of Ontario (RNAO) is delighted to present the second edition of the clinical best practice guideline Delirium, Dementia and Depression in Older Adults: Assessment and Care. Evidence-based practice supports the excellence in service that health professionals are committed to delivering every day. RNAO is delighted to provide this key resource. We offer our heartfelt thanks to the many stakeholders who are making our vision

2016 Registered Nurses' Association of Ontario

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