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3241. Fludarabine Phosphate, Cyclophosphamide, Tacrolimus, Mycophenolate Mofetil, Total-Body Irradiation, and Donor Bone Marrow Transplant in Treating Patients With High-Risk Hematologic Cancer

: Plan to Share IPD: No Plan Description: Individual patient data is protected by HIPAA at each participant organization. Layout table for additional information Studies a U.S. FDA-regulated Device Product: No Additional relevant MeSH terms: Layout table for MeSH terms Lymphoma Syndrome Leukemia Leukemia, Myeloid Multiple Myeloma Neoplasms, Plasma Cell Leukemia, Myeloid, Acute Lymphoma, Follicular Myelodysplastic Syndromes Preleukemia Lymphoma, Non-Hodgkin Leukemia, Lymphoid Precursor Cell

2002 Clinical Trials

3242. Paclitaxel in Treating Patients With Ovarian Stromal Cancer

an effective means of birth control Patients who have met the pre-entry requirements as specified Patients must have signed an approved informed consent and Health Insurance Portability and Accountability Act (HIPAA) authorization Exclusion Criteria: Patients with GOG performance grade of 3 or 4 Patients with a prior invasive malignancy (except non-melanoma skin cancer) who have had any evidence of disease within the last 5 years or whose prior malignancy treatment contraindicates the current protocol

2000 Clinical Trials

3243. Imatinib Mesylate in Treating Patients With Primary Gastrointestinal Stromal Tumor That Has Been Completely Removed By Surgery

from HIPAA regulations) If patient is a cancer survivor, ALL of the following criteria apply: Patient has undergone potentially curative therapy for all prior malignancies No evidence of any prior malignancies for at least 5 years with no evidence of recurrence (except for effectively treated basal cell or squamous carcinoma of the skin, carcinoma in-situ of the cervix that has been effectively treated by surgery alone, or lobular carcinoma in-situ of the ipsilateral or contralateral breast treated

2002 Clinical Trials

3244. Pain Relief Results After Anterior Cruciate Ligament (ACL) Reconstruction

reactions to the nerve block catehter dressing [ Time Frame: first week after surgery ] Risk of falling [ Time Frame: first week after surgery ] Validation of an 8-item outcome survey in comparison to a 40-item "gold standard" outcome survey [ Time Frame: first week after surgery ] Study staffing costs before and after the implementation of HIPAA [ Time Frame: the 40 months of study recruitment ] Patient-reported general health status, and patient-reported knee function, during the first 12 weeks after

2001 Clinical Trials

3245. Privacy in psychiatric treatment: threats and responses. (PubMed)

Privacy in psychiatric treatment: threats and responses. The author provides an overview of the current status of privacy in psychiatric treatment, with particular attention to the effects of new federal regulations authorized by the Health Insurance Portability and Accountability Act (HIPAA).The author reviews the ethical and legal underpinnings for medical privacy, including the empirical data supporting its importance; discusses those portions of the new federal regulations most relevant

2002 American Journal of Psychiatry

3246. The Copernican era of healthcare terminology: a re-centering of health information systems. (Full text)

, and efficient practice patterns. The fabled linkage of knowledge sources at the time and place of care requires the conceptual intermediary of common terminology. A brief history overviewing the evolution of health classifications will provide the foundation for considering present and evolving health terminology developments. Their roles in health information systems will be characterized. Discussion will focus on the likely influences of the HIPAA legislation nationally and the new ISO Healthcare

1998 Proceedings of the AMIA Symposium PubMed

3247. Clinical data exchange standards and vocabularies for messages. (Full text)

Clinical data exchange standards and vocabularies for messages. Motivation for the creation of electronic data interchange (message) standards is discussed. The ISO Open Systems Interface model is described. Clinical information models, message syntax and structure, and the need for a standardized coded vocabulary are explained. The HIPAA legislation and subsequent HHS transaction recommendations are reviewed. The history and mission statements of six of the most popular message development

1998 Proceedings of the AMIA Symposium PubMed

3248. Development of CPR security using impact analysis. (Full text)

Development of CPR security using impact analysis. The HIPAA regulations will require that institutions ensure the prevention of unauthorized access to electronically stored or transmitted patient records. This paper discusses a process for analyzing the impact of security mechanisms on users of computerized patient records through "behind the scenes" electronic access audits. In this way, those impacts can be assessed and refined to an acceptable standard prior to implementation. Through

2000 Proceedings of the AMIA Symposium PubMed

3249. Security model for picture archiving and communication systems (Full text)

Security model for picture archiving and communication systems The modern information revolution has facilitated a metamorphosis of health care delivery wrought with the challenges of securing patient sensitive data. To accommodate this reality, Congress passed the Health Insurance Portability and Accountability Act (HIPAA). While final guidance has not fully been resolved at this time, it is up to the health care community to develop and implement comprehensive security strategies founded

2000 Journal of Digital Imaging PubMed

3250. Developing policies and procedures for a picture archiving and communication system (Full text)

. P&P should be written in clear and concise language. Successful P&P development is an ongoing effort. P&P must be periodically reviewed and updated to reflect changes in PACS technology and changes in clinical operations. New P&P must be developed when a deficit is noted. PACS security is a good example of a topic worthy of P&P development, especially in the face of the Health Insurance Portability and Accountability Act (HIPAA) legislation of 1996. What are the provisions for access control

2001 Journal of Digital Imaging PubMed

3251. A proposed key escrow system for secure patient information disclosure in biomedical research databases. (Full text)

A proposed key escrow system for secure patient information disclosure in biomedical research databases. Access to clinical data is of increasing importance to biomedical research. The pending HIPAA privacy regulations provide specific requirements for the release of protected health information. Under the regulations, biomedical researchers may utilize anonymized data, or adhere to HIPAA requirements regarding protected health information. In order to provide researchers with anonymized data

2002 Proceedings of the AMIA Symposium PubMed

3252. A security architecture for query tools used to access large biomedical databases. (Full text)

A security architecture for query tools used to access large biomedical databases. Disseminating information from large biomedical databases can be crucial for research. Often this data will be patient-specific, and therefore require that the privacy of the patient be protected. In response to this requirement, HIPAA released regulations for the dissemination of patient data. In many cases, the regulations are so restrictive as to render data useless for many purposes. We propose in this paper

2002 Proceedings of the AMIA Symposium PubMed

3253. Influence of the HIPAA Privacy Rule on health research. (Full text)

Influence of the HIPAA Privacy Rule on health research. Anecdotal reports suggest that the Health Insurance Portability and Accountability Act Privacy Rule (HIPAA Privacy Rule) may be affecting health research in the United States.To survey epidemiologists about their experiences with the HIPAA Privacy Rule.Thirteen societies of epidemiology distributed a national Web-based survey; 2805 respondents accessed the survey Web site and 1527 eligible professionals anonymously answered (...) questions.Responses related influences such as research delays and added cost after Privacy Rule implementation, frequency and type of Privacy Rule-related institutional review board modifications, level of difficulty obtaining deidentified data and waivers, experiences with multisite studies, and perceived participant privacy benefits under the rule. Respondents ranked their perceptions of Privacy Rule influence on 5-point Likert scales.A total of 875 (67.8%) respondents reported that the HIPAA Privacy Rule has

2007 JAMA PubMed

3254. HIPAA and patient care: the role for professional judgment. (PubMed)

HIPAA and patient care: the role for professional judgment. Federal health privacy regulations, commonly known as the Health Insurance Portability and Accountability Act (HIPAA) regulations, came into effect in April 2003. Many clinicians and institutions have relied on consultants and risk managers to tell them how to implement these regulations. Much of the controversy and confusion over the HIPAA regulations concern so-called incidental disclosures. Some interpretations of the privacy

2005 JAMA

3255. Health information, the HIPAA privacy rule, and health care: what do physicians think? (Full text)

Health information, the HIPAA privacy rule, and health care: what do physicians think? This study examines physicians' attitudes toward key Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule requirements and assesses the effects of their implementation. We found that despite physicians' generally negative views toward the Privacy Rule, they rated organizations implementing more rule requirements better at protecting the privacy of patient records than organizations

2005 Health affairs (Project Hope) PubMed

3256. Development and testing of a CD-ROM based tutorial for nursing students: getting ready for HIPAA. (PubMed)

Development and testing of a CD-ROM based tutorial for nursing students: getting ready for HIPAA. The purpose of this study was to develop and test a CD-ROM tutorial for nursing students to educate them on how the rules and regulations of the Health Insurance Portability and Accountability Act (HIPAA) affect them as they engage in patient care activities in hospitals. The project was completed in two parts, the first of which was production of a stand-alone, audio lecture, image and text self (...) -instruction on CD-ROM to distribute to students as they began their clinical experience. The second part compared the effectiveness of learning the HIPAA content via CD-ROM to a text-directed, self study method. Students were pretested and randomly assigned to one of the types of instruction based on their seminar group assignment. One group received the CD-ROM, Getting Started with HIPAA, along with a journal article on HIPAA, while the other (control) group received only the journal article. All

2005 The Journal of nursing education

3257. The HIPAA authorization form and effects on survey response rates, nonresponse bias, and data quality: a randomized community study. (PubMed)

The HIPAA authorization form and effects on survey response rates, nonresponse bias, and data quality: a randomized community study. There has been speculation that the Health Insurance Portability and Accountability Act (HIPAA) has muted participation in research but little direct evidence to substantiate those claims exists.To evaluate the effects of including a HIPAA authorization form (HAF) on multiple measures of survey performance. RESEARCH DESIGN, SUBJECTS: A community survey of Olmsted

2007 Medical Care

3258. The impact of HIPAA authorization on willingness to participate in clinical research. (Full text)

The impact of HIPAA authorization on willingness to participate in clinical research. This study systematically examined the impact of inclusion of Health Insurance Portability and Accountability Act (HIPAA) authorization on the willingness of African Americans of diverse sociodemographic characteristics to participate in a clinical research study and explored reasons for nonparticipation.For a purposive sample of 384 African American outpatients at four metropolitan primary care clinics from (...) August 2005 through May 2006, willingness to participate in a hypothetic clinical research study of an antihypertensive medication under one of two experimental conditions was compared. Interviewees were randomly assigned to undergo informed consent alone (control group) or informed consent with HIPAA authorization (HIPAA group). They were asked whether they would participate and reasons for their decisions.A smaller proportion of interviewees in the HIPAA group were willing to enroll in the study

2007 Annals of epidemiology PubMed

3259. Health Insurance Portability Accountability Act (HIPAA) regulations: effect on medical record research. (Full text)

Health Insurance Portability Accountability Act (HIPAA) regulations: effect on medical record research. To evaluate the effect of impending HIPAA regulations on Applications for Exemptions from Institutional Review Board (IRB) approval.HIPAA was implemented to reduce potential for misuse of personal information and restricts access to medical records by insurers, employers, and clinical researchers. We hypothesized that HIPAA regulations adversely impact medical records research.The UW-Madison (...) Human Subjects Committee database was accessed to evaluate success and delays in processing Applications for Exemption between September 1999 and March 2003. The number of protocols submitted, number of required revisions, and number considered nonexempt (requiring full IRB review) were determined.Prior to 2000, applications for medical records research were rare (11 applications in 1999-2000). In anticipation of the implementation of HIPAA regulations, a new application process was instituted

2004 Annals of Surgery PubMed

3260. HIPAA and research: how have the first two years gone? (PubMed)

HIPAA and research: how have the first two years gone? To assess the impact of the Health Insurance Portability and Accountability Act (HIPAA) on research in ophthalmology.A personal perspective with a review of relevant publications.Review of experience at a single institution as it transitioned to enforcing HIPAA guidelines.HIPAA has been costly to institutions and will continue to be so. At Johns Hopkins alone, nearly 26,000 employees have had to take HIPAA compliance training and pass (...) examinations with an overall estimated cost of nearly $2 million in the first year. At the same time, complying with HIPAA regulations has increased institutional awareness of privacy issues.HIPAA has added a layer of regulation to research that has increased the burden of researchers but is unlikely to prevent most research from taking place. Although there are clear benefits to the heightened awareness of the implications of research on study subjects' privacy, the costs of implementing HIPAA have been

2006 American Journal of Ophthalmology

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