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Caregiver Burden Scale

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1. Dementia: assessment, management and support for people living with dementia and their carers

used in this guideline 34 Putting this guideline into practice 38 Recommendations for research 40 1 Case management 40 Dementia: assessment, management and support for people living with dementia and their carers (NG97) © NICE 2019. All rights reserved. Subject to Notice of rights (https://www.nice.org.uk/terms-and- conditions#notice-of-rights). Page 3 of 422 Staff training 40 3 Anticholinergic burden 40 4 Managing delirium superimposed on dementia 41 5 Care and support planning 41 Update (...) , to advance equality of opportunity and to reduce health inequalities. Nothing in this guideline should be interpreted in a way that would be inconsistent with complying with those duties. Commissioners and providers have a responsibility to promote an environmentally sustainable health and care system and should assess and reduce the environmental impact of implementing NICE recommendations wherever possible. Dementia: assessment, management and support for people living with dementia and their carers

2018 National Institute for Health and Clinical Excellence - Clinical Guidelines

2. A 3-Item Screening Scale for Caregiver Burden in Dementia Caregiving: Scale Development and Score Mapping to the 22-Item Zarit Burden Interview. Full Text available with Trip Pro

A 3-Item Screening Scale for Caregiver Burden in Dementia Caregiving: Scale Development and Score Mapping to the 22-Item Zarit Burden Interview. Brief screening scales for caregiver burden are much needed in routine dementia services to efficiently identify caregivers of persons with dementia (PWD) for further intervention. Although the 22-item Zarit Burden Interview (ZBI) is often used, its available screening versions have not performed as well as the full version in distinguishing (...) significant burden. We developed a brief screening scale that is valid and comparable to ZBI in distinguishing caregiver burden.Baseline data of an ongoing cohort study.Family careivers of community-dwelling PWD (n = 394).Participants completed questionnaires containing ZBI and other caregiving scales. Initially, we split the study samples into 2-the derivation sample (n = 215) was used to develop a brief scale that best distinguishes significant burden (using the best-subset approach with 10-fold cross

2018 Journal of the American Medical Directors Association

3. Impact on Family or Care-givers of Very Old ICU-survivors, Trajectories and 6 Months' Outcome in the Very Old.

Intervention/treatment No Intervention: Usual care ICU with ordinary care for elderly ICU survivors and their care-givers Active Comparator: Telephone support ICU with day-time telephone support to care-givers Other: Telephone support on demand Dedicated phone number for help and advice for caregivers Outcome Measures Go to Primary Outcome Measures : Burden scale for Family Caregiver [ Time Frame: 6 months post ICU discharge ] In order to assess the burden of care the investigaors will use an European (...) is that critical illness can be a large stressor to care-givers of survivors in the VIP measured as the occurrence and severity of the usual problems like PTSD and depression. The investigators hypothesize that a low-threshold on-line support program decreases the magnitude of anxiety, depression and PTSD for care-givers of very old intensive care patients (VIP) after discharge. Condition or disease Intervention/treatment Phase Functionally-Impaired Elderly Caregivers PTSD Depression, Anxiety Intensive Care

2017 Clinical Trials

4. A Composite Measure of Caregiver Burden in Dementia: The Dementia Burden Scale-Caregiver. Full Text available with Trip Pro

A Composite Measure of Caregiver Burden in Dementia: The Dementia Burden Scale-Caregiver. To better capture the scope of caregiver burden by creating a composite of 3 existing measures that assess different health domains.Prospective follow-up study.University-based dementia care management program.Caregivers of persons with dementia (PWD) (N=1,091).The composite measure (the Dementia Burden Scale-Caregiver (DBS-CG)) was based on the Modified Caregiver Strain Index, Neuropsychiatric Inventory (...) of DBS-CG change to change in caregiver self-efficacy and functional ability of PWD.The bifactor CFA model fit best (RMSEA = 0.04, CFI = 0.95). Based on this model, a DBS-CG scale was created wherein all items were transformed to a possible range of 0 to 100 and then averaged. Higher scores indicate higher burden. Mean DBS-CG score was 27.3. The reliability was excellent (coefficient omega=0.93). MID estimates ranged from 4 to 5 points (effect sizes: 0.20-0.49).This study provides support

2018 Journal of the American Geriatrics Society

5. Screening for caregivers at risk: Extended validation of the short version of the Burden Scale for Family Caregivers (BSFC-s) with a valid classification system for caregivers caring for an older person at home. Full Text available with Trip Pro

Screening for caregivers at risk: Extended validation of the short version of the Burden Scale for Family Caregivers (BSFC-s) with a valid classification system for caregivers caring for an older person at home. Informal caregivers' (CGs') subjective burden is an important aspect of the care situation because it is linked to various outcomes such as health, mortality risk, institutionalization, and caregiving style. The aims of this study were a) to examine the convergent and discriminant (...) validity of the 10-item short version of the Burden Scale for Family Caregivers (BSFC-s) and b) to develop a valid classification system for interpreting BSFC-s scores.In this cross-sectional study, we analyzed data obtained from 386 informal CGs who applied for an initial grade or upgrade of the care level for the care recipient at the Medical Service of Compulsory Health Insurance Funds of Bavaria (Germany). To validate the BSFC-s, we analyzed the reliability and the convergent/discriminant validity

2018 BMC health services research

6. What are the attitudes and perceptions of patients with pulmonary fibrosis and their carers towards use of oxygen therapy?

of preparedness for the realities of O 2 use both in terms of practicalities of equipment use and psychological impact. There appeared to be significant gaps in education and instruction for patients and carers on O 2 use. For the vast majority their only education was received from the O 2 delivery person with few receiving instruction from a clinician. Practical problems associated with equipment use were commonplace and added to the burden for carers who often assumed responsibility for the day to day (...) and in qualitative interviews, even though the majority were sedentary and there was no improvement in objectively measured step counts. The findings have important implications for multidisciplinary team care prior to and following the introduction of supplemental O 2 , particularly in relation to patient and carer preparedness and education, practicalities of equipment use and how to support this, and the particular needs of carers. A. Reliability of evidence Methods of data capture and analysis were generally

2018 Palliative Care Evidence Review Service (PaCERS)

7. Carer burden among carers of patients with chronic illness in South Asian countries

Carer burden among carers of patients with chronic illness in South Asian countries Print | PDF PROSPERO This information has been provided by the named contact for this review. CRD has accepted this information in good faith and registered the review in PROSPERO. CRD bears no responsibility or liability for the content of this registration record, any associated files or external websites. Email salutation (e.g. "Dr Smith" or "Joanne") for correspondence: Organisation web address: Timing (...) of administration, route of administration, vehicle. ">Data to be extracted: intervention of interest Example: Serum creatinine; continuous; umol/L (may be recalculated from mg/dL). ">Data to be extracted: primary outcome(s) Example: Blood urea nitrogen; continuous; mmol/L (may be recalculated from mg/dL); Renal histological damage as assessed by Jablonski scale; continuous; Jablonski score. ">Data to be extracted: secondary outcome(s) Example: 1st author, year of publication, language, journal. ">Data

2018 PROSPERO

8. Do patients and carers agree on symptom burden in advanced COPD? Full Text available with Trip Pro

Do patients and carers agree on symptom burden in advanced COPD? Accurate informal carer assessment of patient symptoms is likely to be valuable for decision making in managing the high symptom burden of COPD in the home setting. Few studies have investigated agreement between patients and carers in COPD. We aimed to assess agreement between patients and carers on symptoms, and factors associated with disagreement in a population-based sample of patients with advanced COPD.This (...) was a prospective, cross-sectional analysis of data from 119 advanced COPD patients and their carers. Patients and carers separately rated symptoms on a 4-point scale. Wilcoxon signed-rank tests and weighted Cohen's kappa determined differences in patient and carer scores and patient-carer agreement, respectively. We identified characteristics associated with incongruence using Spearman's rank correlation and Mann-Whitney U tests.There were no significant differences between group-level patient and carer scores

2018 International journal of chronic obstructive pulmonary disease

9. Case managers improve outcomes for people with dementia and their carers

Case managers improve outcomes for people with dementia and their carers Case managers for people with dementia and their carers Discover Portal Discover Portal Case managers improve outcomes for people with dementia and their carers Published on 24 April 2018 doi: Using a case manager to coordinate health and social care improves the challenging behaviour of people with dementia and reduces the burden on caregivers. Quality of life of caregivers improves the most when case managers have (...) ) and £11.6 billion is the value of the work of unpaid carers of people with dementia. Dementia places a heavy burden on the person and their caregivers. So far, no ideal community-based care strategy has been identified for dementia. Case managers have previously been used to facilitate coordination, collaboration and communication. However, results on the benefits of this strategy have not been consistent. Care coordination of some kind is available in the UK, but this takes different forms. It may

2019 NIHR Dissemination Centre

10. Caring for the Carer: Home design and modification for carers of young people with disability

(Ranmuthugala, 2009). In the New Zealand context, McAllister et al used two well-being tools, the Bakas Caregiving Outcomes Scale (BCOS), and Personal Well- being Index (PWI) to measure the wellbeing of carers. They found that female carers and those with poor pre-caring health, had significantly lower well-being, particularly carer health and social participation (McAllister et al., 2012). Many carers also report ‘burnout’, a feeling of physical, mental or emotional exhaustion. Providing care can also lead (...) contributor to people with disability being able to remain in their own home and community, and is also essential for carer safety and comfort. As Yong et al (Jung & Bridge, 2009) noted: “unlike group facilities where multiple care givers are available, at home the loss of a care-giver through injury is a critical incident” (p.21). A critical incident in this context may result in a carer who is unable to continue in the caring role and this precipitate institutionalisation. Prevention

2014 Home Modification Information Clearinghouse

11. A coping programme moderately reduces depression and anxiety in carers of people with dementia

and anxiety scores for up to two years. It was also cost-effective. The programme consisted of eight sessions delivered by psychology graduates, covering topics such as managing difficult behaviour, accessing support and planning for the future. One in three people over 65 develop dementia and family are often the primary caregivers. The findings of this trial support NICE recommendations that the psychological burden upon carers is assessed and that they are given support. Share your views (...) , or the person being cared for had died. What did it find? The START intervention reduced carers’ anxiety and depression in both the short (8 months) and long term (12 and 24 months). By eight months, START had reduced scores on the 42-point Hospital Anxiety and Depression Scale (HADS-T) from 13.5 at baseline to 12.9. Those receiving usual treatment had a small increase in score from 14.8 to 14.9. By 12 months, scores in the START group were further reduced to 12.5, but had risen to 13.6 at 24 months

2018 NIHR Dissemination Centre

12. Silent strain of caregiving: exploring the best predictors of distress in family carers of geriatric patients Full Text available with Trip Pro

Silent strain of caregiving: exploring the best predictors of distress in family carers of geriatric patients The aim of this article was to identify the best predictors of distress suffered by family carers (FCs) of geriatric patients.A cross-sectional study of 100 FC-geriatric patient dyads was conducted. The negative impact of care (NIoC) subscale of the COPE index was dichotomized to identify lower stress (score of ≤15 on the scale) and higher stress (score of ≥16 on the scale) exerted (...) sense of general support; more hours of care per week; and the motor retardation of the cared-for person measured with the speed of the Timed Up and Go (TUG) test.Worse performance on the TUG test was only the patient-related predictor of distress among the variables examined as contributors to the higher NIoC. Enhancing the mobility of geriatric patients through suitably tailored kinesitherapeutic methods during their hospital stay may mitigate the burden endured by FCs.

2017 Clinical interventions in aging

13. Caregiver burden in family carers of people with dementia with Lewy bodies and Alzheimer's disease. (Abstract)

Inventory, p = 0.004) and also with impaired ADL functioning (Rapid Disability Rating Scale-2, p < 0.0005).Caregiver distress differed (RSS total, p = 0.005) between people caring for someone with AD (15.0) and those caring for someone with DLB (19.9). These findings have direct implications for the needs and resources that could be available for these individuals and indicate the need for further research into caregiver burden in carers to people with DLB. Copyright © 2016 John Wiley & Sons (...) Caregiver burden in family carers of people with dementia with Lewy bodies and Alzheimer's disease. To characterise the differences in caregiver distress between carers of people diagnosed with dementia with Lewy bodies (DLB) and people with Alzheimer's disease (AD), with a view to differentiating and improving support for caregivers.This study is a part of two larger Norwegian studies, DemVest (n = 265) and The Norwegian Dementia Register (n = 2220), with data from caregivers and people

2016 International Journal of Geriatric Psychiatry

14. Barriers and facilitators to reducing anticholinergic burden from the perspectives of patients, their carers and healthcare professionals: a qualitative systematic review

Barriers and facilitators to reducing anticholinergic burden from the perspectives of patients, their carers and healthcare professionals: a qualitative systematic review Print | PDF PROSPERO This information has been provided by the named contact for this review. CRD has accepted this information in good faith and registered the review in PROSPERO. CRD bears no responsibility or liability for the content of this registration record, any associated files or external websites. Email salutation (...) to be extracted: animal model Example: Dose, timing of administration, frequency of administration, route of administration, vehicle. ">Data to be extracted: intervention of interest Example: Serum creatinine; continuous; umol/L (may be recalculated from mg/dL). ">Data to be extracted: primary outcome(s) Example: Blood urea nitrogen; continuous; mmol/L (may be recalculated from mg/dL); Renal histological damage as assessed by Jablonski scale; continuous; Jablonski score. ">Data to be extracted: secondary

2018 PROSPERO

15. Effectiveness of a psychoeducational intervention for caregivers of People With Dementia with regard to burden, anxiety and depression: A systematic review

有18项随机对照试验符合纳入标准。其中7项被归类为基于技术的干预措施,11项被归类为基于群体的干预措施。 结论 对照护人员进行心理教育干预有助于提高其对疾病的认识,培养解决问题的能力,并且促进社会支持力度。基于技术的干预措施对心理负担有显著影响,而基于群体的干预措施可对焦虑、抑郁情绪、失眠和心理负担以及生活质量和自我效能感产生影响。 影响 研究发现可用于根据不同疾病阶段对未来干预措施下的照护人员进行分类,以获得更为精确的结果。. Keywords: anxiety; burden; carers; depression; home care; informal caregiver; nurse; psychoeducational intervention; randomized controlled trial; systematic review. © 2019 John Wiley & Sons Ltd. Similar articles Medical Advisory Secretariat. Ont Health Technol Assess Ser 8 (4), 1-98 (...) Effectiveness of a psychoeducational intervention for caregivers of People With Dementia with regard to burden, anxiety and depression: A systematic review Effectiveness of a Psychoeducational Intervention for Caregivers of People With Dementia With Regard to Burden, Anxiety and Depression: A Systematic Review - PubMed This site needs JavaScript to work properly. Please enable it to take advantage of the complete set of features! Welcome to the new PubMed. For legacy PubMed go to . Clipboard

2020 EvidenceUpdates

16. Systematic review and qualitative meta-synthesis of experiences of burden of treatment amongst patients with Chronic Obstructive Pulmonary Disease or Lung Cancer and their informal care-givers

Systematic review and qualitative meta-synthesis of experiences of burden of treatment amongst patients with Chronic Obstructive Pulmonary Disease or Lung Cancer and their informal care-givers Print | PDF PROSPERO This information has been provided by the named contact for this review. CRD has accepted this information in good faith and registered the review in PROSPERO. CRD bears no responsibility or liability for the content of this registration record, any associated files or external (...) of reperfusion (if applicable). ">Data to be extracted: animal model Example: Dose, timing of administration, frequency of administration, route of administration, vehicle. ">Data to be extracted: intervention of interest Example: Serum creatinine; continuous; umol/L (may be recalculated from mg/dL). ">Data to be extracted: primary outcome(s) Example: Blood urea nitrogen; continuous; mmol/L (may be recalculated from mg/dL); Renal histological damage as assessed by Jablonski scale; continuous; Jablonski score

2016 PROSPERO

17. Patient- and Caregiver-Related Factors Associated with Caregiver Assessed Global Deterioration Scale Scoring in Demented Patients Full Text available with Trip Pro

relatives; Mini-Mental State Examination (MMSE); Neuropsychiatric Inventory (NPI); Katz Index of Activities of Daily Living (K-IADL) were administered to (a) patients and Center for Epidemiologic Studies-Depression (CES-D) Scale; Zarit Burden Interview (ZBI) to (b) caregivers. Participants' demographics and patients' and caregivers' characteristics were entered into a 3-block regression analysis.The final model explained 55% of the total variance of the caregiver assessed GDS score. The following (...) Patient- and Caregiver-Related Factors Associated with Caregiver Assessed Global Deterioration Scale Scoring in Demented Patients Informant-based rating scales are widely used in dementia but patients' and caregivers' features influence the final scoring. We aimed to evaluate the role of patient- and caregiver-related factors in a caregiver rated Global Deterioration Scale (GDS) score in a sample of Greek patients with dementia.We included 194 patients with dementia and 194 caregivers/family

2018 Current gerontology and geriatrics research

18. Caregiver Burden Scale

Scale Aka: Caregiver Burden Scale From Related Chapters II. Indications Assess burden in relatives of impaired elderly III. Questions (rated as 0-Never to 4-Nearly always) Self-administered survey completed by caregiver ral feelings Not enough time for self Over-taxed with responsibilities Lost control of life Feelings regarding caring for relative Uncertain about what to do for relative Feeling that should do more for relative Feeling that could do a better job of caring Overall level of burden (...) Caregiver Burden Scale Caregiver Burden Scale Toggle navigation Brain Head & Neck Chest Endocrine Abdomen Musculoskeletal Skin Infectious Disease Hematology & Oncology Cohorts Diagnostics Emergency Findings Procedures Prevention & Management Pharmacy Resuscitation Trauma Emergency Procedures Ultrasound Cardiovascular Emergencies Lung Emergencies Infectious Disease Pediatrics Neurologic Emergencies Skin Exposure Miscellaneous Abuse Cancer Administration 4 Caregiver Burden Scale Caregiver Burden

2018 FP Notebook

19. The mediating roles of caregiver social support and self-efficacy on caregiver burden in Parkinson's disease. (Abstract)

and their caregivers from the First Affiliated Hospital of Shanxi Medical University in China between July and December 2017. Patients completed scales evaluating their cognition, motor function, and depression. Caregivers completed scales evaluating social support, self-efficacy, anxiety, depression, and caregiver burden. We applied Partial Least Squares Structural Equation Modeling (PLS-SEM) to analyze the mediating effects.Caregiver self-efficacy was a partial mediator on the path of patient motor function (...) The mediating roles of caregiver social support and self-efficacy on caregiver burden in Parkinson's disease. Most studies in Parkinson's disease (PD) have focused on the direct effects of social support and self-efficacy on caregiver burden. This study aimed to test our prediction that caregiver self-efficacy and social support were two chaining mediator variables on the paths for patient factors affecting caregiver burden, caregiver anxiety, and depression.We enrolled patients with PD

2019 Journal of Affective Disorders

20. Can brief telephone interventions reduce caregiver burden and depression in caregivers of people with cognitive impairment? - long-term results of the German day-care study (RCT). Full Text available with Trip Pro

Can brief telephone interventions reduce caregiver burden and depression in caregivers of people with cognitive impairment? - long-term results of the German day-care study (RCT). Day-care and telephone counseling have been discussed as effective support measures for caregivers of people with cognitive impairment.In a two-arm cluster-randomized trial involving multicomponent therapy for cognitively impaired persons in day-care centers and telephone counseling for their caregivers versus (...) treatment as usual (TAU), we investigated long-term effects on caregivers' burden and depressiveness. Person-caregiver dyads involving home-dwelling persons with MCI, mild dementia, or moderate dementia were eligible. Day-care centers were randomized into an intervention group (IG) or a control group (CG). Outcome assessors were blinded. Out of 359 caregivers who had completed a 6-month intervention phase (nIG = 205, nCG = 154), a total of 304 of them were available at the 12-month follow-up (nIG = 173

2019 BMC Geriatrics Controlled trial quality: uncertain

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