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1. The contributions of family care-givers at end of life: A national post-bereavement census survey of cancer carers' hours of care and expenditures. Full Text available with Trip Pro

The contributions of family care-givers at end of life: A national post-bereavement census survey of cancer carers' hours of care and expenditures. Family members provide vital care at end of life, enabling patients to remain at home. Such informal care contributes significantly to the economy while supporting patients' preferences and government policy. However, the value of care-givers' contributions is often underestimated or overlooked in evaluations. Without information on the activities (...) and expenditures involved in informal care-giving, it is impossible to provide an accurate assessment of carers' contribution to end-of-life care.The aim of this study was to investigate the contributions and expenditure of informal, family care-giving in end-of-life cancer care.A national census survey of English cancer carers was conducted. Survey packs were mailed to 5271 people who registered the death of a relative to cancer during 1-16 May 2015. Data were collected on decedents' health and situation

2017 Palliative medicine

2. "Small small interventions, big big roles"- a qualitative study of patient, care-giver and health-care worker experiences of a palliative care programme in Kerala, India. Full Text available with Trip Pro

"Small small interventions, big big roles"- a qualitative study of patient, care-giver and health-care worker experiences of a palliative care programme in Kerala, India. Home-based palliative care is an essential resource for many communities. We conducted a qualitative study to explore perceptions of a home-based palliative care programme in Kerala, India, from the perspective of patients, their care-givers and the doctors, nurses and volunteers running the intervention.A descriptive (...) qualitative study was carried out. One focus group discussion (FGD) was conducted with patients (n = 8) and two with male and female volunteers (n = 12); and interviews were conducted with doctors (n = 3), nurses (n = 3) and care-givers (n = 14). FGDs and interviews were conducted in Malayalam, audio-recorded, transcribed verbatim and translated into English. Transcripts were coded and analysed using manual content analysis.Doctors, nurses and volunteers have interdependent roles in providing palliative

2019 BMC Palliative Care

3. Supporting adult carers

Supporting adult carers Supporting adult carers NICE guideline Published: 22 January 2020 www.nice.org.uk/guidance/ng150 © NICE 2020. All rights reserved. Subject to Notice of rights (https://www.nice.org.uk/terms-and-conditions#notice-of- rights).Your responsibility Your responsibility The recommendations in this guideline represent the view of NICE, arrived at after careful consideration of the evidence available. When exercising their judgement, professionals and practitioners are expected (...) a responsibility to promote an environmentally sustainable health and care system and should assess and reduce the environmental impact of implementing NICE recommendations wherever possible. Supporting adult carers (NG150) © NICE 2020. All rights reserved. Subject to Notice of rights (https://www.nice.org.uk/terms-and- conditions#notice-of-rights). Page 2 of 59Contents Contents Overview 5 Who is it for? 5 Context 6 The need for the guideline 6 The purpose of this guideline 7 How it relates to legislation

2020 National Institute for Health and Clinical Excellence - Clinical Guidelines

4. Twenty years of home-based palliative care in Malappuram, Kerala, India: a descriptive study of patients and their care-givers. Full Text available with Trip Pro

Twenty years of home-based palliative care in Malappuram, Kerala, India: a descriptive study of patients and their care-givers. The well lauded community-based palliative care programme of Kerala, India provides medical and social support, through home-based care, for patients with terminal illness and diseases requiring long-term support. There is, however, limited information on patient characteristics, caregivers and programme performance. This study was carried out to describe: i (...) ) the patients enrolled in the programme from 1996 to 2016 and their diagnosis, and ii) the care-giver characteristics and palliative care support from nurses and doctors in a cohort of patients registered during 2013-2015.A descriptive study was conducted in the oldest community-based palliative clinic in Kerala. Data were collected from annual patient registers from 1996 to 2016 and patient case records during the period 2013-2015.While 91% of the patients registered in the clinic in 1996 had cancer, its

2018 BMC Palliative Care

5. Assessment of partograph utilization and associated factors among obstetric care givers at public health institutions in central zone, Tigray, Ethiopia Full Text available with Trip Pro

Assessment of partograph utilization and associated factors among obstetric care givers at public health institutions in central zone, Tigray, Ethiopia Partograph is one of the best effective obstetric tools used to monitoring labor and prevent prolonged or obstructed labor which accounts for about 22% of maternal deaths in Ethiopia. This study was aimed to assess partograph utilization and associated factors among obstetric care givers. Facility based cross sectional study was used (...) in the randomly selected health facilities. Total 220 obstetric care givers were selected using simple random sampling technique. Data were entered and analyzed using SPSS version 22.0. Bivariate and multivariate logistic regression analysis was used to identify the associations of each explanatory variable with the outcome variable. Finally, odds ratio with its 95% confidence interval and p-value of 0.05 was used to identify significant variables.Out of 198 obstetric care providers, 73.3% used partograph

2018 BMC research notes

6. Psychosocial factors impacting primary care-givers decision to implement sun protection behaviours for children aged 0-6 years: a systematic review

Psychosocial factors impacting primary care-givers decision to implement sun protection behaviours for children aged 0-6 years: a systematic review Print | PDF PROSPERO This information has been provided by the named contact for this review. CRD has accepted this information in good faith and registered the review in PROSPERO. The registrant confirms that the information supplied for this submission is accurate and complete. CRD bears no responsibility or liability for the content

2020 PROSPERO

7. Dementia: assessment, management and support for people living with dementia and their carers

, to advance equality of opportunity and to reduce health inequalities. Nothing in this guideline should be interpreted in a way that would be inconsistent with complying with those duties. Commissioners and providers have a responsibility to promote an environmentally sustainable health and care system and should assess and reduce the environmental impact of implementing NICE recommendations wherever possible. Dementia: assessment, management and support for people living with dementia and their carers (...) 1.3 Care coordination 19 1.4 Interventions to promote cognition, independence and wellbeing 20 1.5 Pharmacological interventions for dementia 21 1.6 Medicines that may cause cognitive impairment 25 1.7 Managing non-cognitive symptoms 25 1.8 Assessing and managing other long-term conditions in people living with dementia 27 1.9 Risks during hospital admission 29 1.10 Palliative care 30 1.11 Supporting carers 31 1.12 Moving to different care settings 32 1.13 Staff training and education 32 T erms

2018 National Institute for Health and Clinical Excellence - Clinical Guidelines

8. The association between subjective caregiver burden and depressive symptoms in carers of older relatives: A systematic review and meta-analysis. Full Text available with Trip Pro

The association between subjective caregiver burden and depressive symptoms in carers of older relatives: A systematic review and meta-analysis. Family carers are an important source of care for older people. Although several studies have reported that subjective caregiver burden is related to depressive symptoms there are no systematic reviews quantifying this association.To establish the extent to which subjective caregiver burden is associated with depressive symptoms and whether (...) for people living with dementia compared to those caring for frail older people, and stroke survivors. Carer sex, age and kinship did not change the estimate of the effect.Subjective caregiver burden is a significant risk factor for depressive symptoms in carers of older people and may precipitate clinical depression. Those caring for people with dementia experience greater burden. There is a need for longitudinal evaluations examining the effects of potential mediators of the association of subjective

2019 PLoS ONE

9. Family and carer smoking control programmes for reducing children's exposure to environmental tobacco smoke. Full Text available with Trip Pro

Family and carer smoking control programmes for reducing children's exposure to environmental tobacco smoke. Children's exposure to other people's tobacco smoke (environmental tobacco smoke, or ETS) is associated with a range of adverse health outcomes for children. Parental smoking is a common source of children's exposure to ETS. Older children in child care or educational settings are also at risk of exposure to ETS. Preventing exposure to ETS during infancy and childhood has significant (...) Science Citation Index & Science Citation Index (Web of Knowledge). We conducted the most recent search in February 2017.We included controlled trials, with or without random allocation, that enrolled participants (parents and other family members, child care workers, and teachers) involved in the care and education of infants and young children (from birth to 12 years of age). All mechanisms for reducing children's ETS exposure were eligible, including smoking prevention, cessation, and control

2018 Cochrane

10. Information or education interventions for adult intensive care unit (ICU) patients and their carers. Full Text available with Trip Pro

Information or education interventions for adult intensive care unit (ICU) patients and their carers. During intensive care unit (ICU) admission, patients and their carers experience physical and psychological stressors that may result in psychological conditions including anxiety, depression, and post-traumatic stress disorder (PTSD). Improving communication between healthcare professionals, patients, and their carers may alleviate these disorders. Communication may include information (...) reference lists of included studies and related reviews.We included randomised controlled trials (RCTs), and planned to include quasi-RCTs, comparing information or education interventions presented to participants versus no information or education interventions, or comparing information or education interventions as part of a complex intervention versus a complex intervention without information or education. We included participants who were adult ICU patients, or their carers; these included

2018 Cochrane

11. Mindfulness-based stress reduction for family carers of people with dementia. Full Text available with Trip Pro

Mindfulness-based stress reduction for family carers of people with dementia. Caring for people with dementia is highly challenging, and family carers are recognised as being at increased risk of physical and mental ill-health. Most current interventions have limited success in reducing stress among carers of people with dementia. Mindfulness-based stress reduction (MBSR) draws on a range of practices and may be a promising approach to helping carers of people with dementia.To assess (...) to exclude little or no effect. Due to the very low quality of the evidence, we could not be certain of any effects of MBSR on carer burden, the use of positive coping strategies, or dropout rates.We found no studies that looked at quality of life of carers or care-recipients, or institutionalisation.Only one included study reported on adverse events, noting a single adverse event related to yoga practices at home AUTHORS' CONCLUSIONS: After accounting for non-specific effects of the intervention (i.e

2018 Cochrane

12. Impact of a Training in Therapeutic Education on the Relation Between Care Givers and Their Patients

Impact of a Training in Therapeutic Education on the Relation Between Care Givers and Their Patients Impact of a Training in Therapeutic Education on the Relation Between Care Givers and Their Patients - Full Text View - ClinicalTrials.gov Hide glossary Glossary Study record managers: refer to the if submitting registration or results information. Search for terms x × Study Record Detail Saved Studies Save this study Warning You have reached the maximum number of saved studies (100). Please (...) remove one or more studies before adding more. Impact of a Training in Therapeutic Education on the Relation Between Care Givers and Their Patients (METIS) The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. of clinical studies and talk to your health care provider before participating. Read our for details. ClinicalTrials.gov Identifier: NCT03323996

2017 Clinical Trials

13. Responses of care givers to children under the age of five with fever living in areas where malaria is endemic: a systematic review of qualitative studies. (Abstract)

Responses of care givers to children under the age of five with fever living in areas where malaria is endemic: a systematic review of qualitative studies. 27820471 2019 11 20 1838-2142 6 12 Suppl 2008 JBI library of systematic reviews JBI Libr Syst Rev Responses of care givers to children under the age of five with fever living in areas where malaria is endemic: a systematic review of qualitative studies. 1-8 Chinkhumba Jobiba J 1Malaria Alert Centre, College of Medicine, Private Bag 360

2017 JBI library of systematic reviews

14. Awareness of Breast Cancer among Female Care Givers in Tertiary Cancer Hospital, China Full Text available with Trip Pro

Awareness of Breast Cancer among Female Care Givers in Tertiary Cancer Hospital, China Objective: Breast cancer is a worldwide public health issue and most common cancer diagnosed among women including China, where advanced stages at diagnosis appears to be increasing and an ever-rising incidence twice as fast as global rates. The study was conducted to describe the awareness of breast cancer and associated factors among care giver women in tertiary Cancer Hospital, China. Methods

2017 Asian Pacific journal of cancer prevention : APJCP

15. Service user and care giver involvement in mental health system strengthening in Nepal: a qualitative study on barriers and facilitating factors Full Text available with Trip Pro

Service user and care giver involvement in mental health system strengthening in Nepal: a qualitative study on barriers and facilitating factors Service user and caregiver involvement has become an increasingly common strategy to enhance mental health outcomes, and has been incorporated in the mental healthpolicies of many developed nations. However, this practice is non-existent or fragmented in low and middle income countries (LMICs). Instances of service user and caregiver involvement have (...) strategies to overcome barriers. Key Informant Interviews (n = 24) were conducted with service users and caregivers who were either affiliated to a mental health organization or receiving menta health care integrated within primary care. Purposive sampling was employed. Data collection was carried out in 2014 in Chitwan and Kathmandu districts of Nepal. Data analysis was carried out in NVivo10 using a framework approach.The involvement of service users affiliated to mental health organizations in policy

2017 International journal of mental health systems

16. Impact on Family or Care-givers of Very Old ICU-survivors, Trajectories and 6 Months' Outcome in the Very Old.

is that critical illness can be a large stressor to care-givers of survivors in the VIP measured as the occurrence and severity of the usual problems like PTSD and depression. The investigators hypothesize that a low-threshold on-line support program decreases the magnitude of anxiety, depression and PTSD for care-givers of very old intensive care patients (VIP) after discharge. Condition or disease Intervention/treatment Phase Functionally-Impaired Elderly Caregivers PTSD Depression, Anxiety Intensive Care (...) at ICU level to give support to caregivers or not (cluster-randomisation) Masking: None (Open Label) Primary Purpose: Supportive Care Official Title: Impact on Family or Care-givers of Very Old ICU-survivors, Trajectories and 6 Months' Outcome in the Very Old. Estimated Study Start Date : December 2017 Estimated Primary Completion Date : December 2018 Estimated Study Completion Date : May 2019 Resource links provided by the National Library of Medicine related topics: Arms and Interventions Go to Arm

2017 Clinical Trials

17. Low-vision Rehabilitation Program for Low-vision Patients and Care Givers

Low-vision Rehabilitation Program for Low-vision Patients and Care Givers Low-vision Rehabilitation Program for Low-vision Patients and Care Givers - Full Text View - ClinicalTrials.gov Hide glossary Glossary Study record managers: refer to the if submitting registration or results information. Search for terms x × Study Record Detail Saved Studies Save this study Warning You have reached the maximum number of saved studies (100). Please remove one or more studies before adding more. Low-vision (...) Rehabilitation Program for Low-vision Patients and Care Givers The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. of clinical studies and talk to your health care provider before participating. Read our for details. ClinicalTrials.gov Identifier: NCT03166072 Recruitment Status : Not yet recruiting First Posted : May 24, 2017 Last Update Posted : August 24, 2017 See

2017 Clinical Trials

18. Determinants of self- and carer-rated quality of life and caregiver burden in Alzheimer disease. (Abstract)

Determinants of self- and carer-rated quality of life and caregiver burden in Alzheimer disease. We aimed to investigate factors associated with self- and carer-rated quality of life (QoL) and caregiver burden related to very mild to severe clinical Alzheimer disease (AD).One hundred patient-carer dyads were recruited, and assessments of relevant outcomes were performed, including sociodemographic characteristics, QoL, activities of daily living (ADL), cognitive performance, behavioural (...) and psychological symptoms of dementia (BPSD), caregiver burden, and health resource utilisation.There was a strong correlation between carer- and self-rated QoL, with patients consistently rating their QoL higher than caregivers. Duration of illness did not affect the QoL ratings. There was an inverse association between both self- and carer-rated QoL with age, age at symptom onset, impairment of ADL, time spent on assisting the patient, and depression. Both self- and carer-rated QoL ratings were higher

2019 International Journal of Geriatric Psychiatry

19. Nusinersen (Spinraza): reports of communicating hydrocephalus; discuss symptoms with patients and carers and investigate urgently

Nusinersen (Spinraza): reports of communicating hydrocephalus; discuss symptoms with patients and carers and investigate urgently Nusinersen (Spinraza▼): reports of communicating hydrocephalus; discuss symptoms with patients and carers and investigate urgently - GOV.UK GOV.UK uses cookies to make the site simpler. Search Nusinersen (Spinraza▼): reports of communicating hydrocephalus; discuss symptoms with patients and carers and investigate urgently Advise patients and their caregivers to seek (...) of communicating hydrocephalus and its clinical features with patients and their caregivers advise them to seek urgent medical attention if any possible symptoms or signs develop including: persistent vomiting or headache, decreased consciousness, or a rapid increase in head size in children consider communicating hydrocephalus in the differential diagnosis of any patient with suggestive symptoms and signs and investigate them urgently refer patients with hydrocephalus to a neurosurgeon as soon as possible

2018 MHRA Drug Safety Update

20. What are the attitudes and perceptions of patients with pulmonary fibrosis and their carers towards use of oxygen therapy?

and in qualitative interviews, even though the majority were sedentary and there was no improvement in objectively measured step counts. The findings have important implications for multidisciplinary team care prior to and following the introduction of supplemental O 2 , particularly in relation to patient and carer preparedness and education, practicalities of equipment use and how to support this, and the particular needs of carers. A. Reliability of evidence Methods of data capture and analysis were generally (...) and their carers towards use of oxygen therapy? Date 29/11/18 . Evidence Implications : Clinical: ILD multidisciplinary teams should recognise the introduction of oxygen therapy as a highly significant milestone for IPF patients and their carers, and as a trigger for more intensive support around its introduction. Particular consideration should be given to preparing patients and caregivers in advance for the psychological impacts and practical challenges of use. Key domains to address include perceived stigma

2018 Palliative Care Evidence Review Service (PaCERS)

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