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Cancer Survivor Care

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21. Cancer survivors' access to care and quality of life: Do sexual minorities fare worse than heterosexuals? (PubMed)

Cancer survivors' access to care and quality of life: Do sexual minorities fare worse than heterosexuals? Adults with poor access to care are known to have worse quality of life (QOL). The purpose of the current study was to determine differences in cancer survivors' access to care by sexual orientation and to examine the association between access to care and QOL.The current secondary data analysis used 4 years of Behavioral Risk Factor Surveillance System data regarding adult men and women (...) who self-reported a history of cancer. Among the 70,524 cancer survivors, a total of 1931 self-identified as sexual minorities, defined as lesbian, gay, bisexual, or other nonheterosexual orientation.Sexual minority women had significantly more access deficits compared with heterosexual women (42.7% vs 28.0%; P < .0001), whereas men of different sexual orientations had similar access to care. Among sexual minority women, those with access deficits had higher odds of poor physical QOL compared

2019 Cancer

22. Identifying and characterizing cancer survivors in the US primary care safety net. (PubMed)

Identifying and characterizing cancer survivors in the US primary care safety net. Primary care providers must understand the use patterns, clinical complexity, and primary care needs of cancer survivors to provide quality health care services. However, to the authors' knowledge, little is known regarding the prevalence and health care needs of this growing population, particularly in safety net settings.The authors identified adults with a history of cancer documented in primary care (...) electronic health records within a network of community health centers (CHCs) in 19 states. The authors estimated cancer history prevalence among >1.2 million patients and compared sex-specific site distributions with national estimates. Each survivor was matched to 3 patients without cancer from the same set of clinics. The demographic characteristics, primary care use, and comorbidity burden then were compared between the 2 groups, assessing differences with absolute standardized mean differences

2019 Cancer

23. Patterns of comorbidities in hospitalised cancer survivors for palliative care and associated in-hospital mortality risk: A latent class analysis of a statewide all-inclusive inpatient data. (PubMed)

Patterns of comorbidities in hospitalised cancer survivors for palliative care and associated in-hospital mortality risk: A latent class analysis of a statewide all-inclusive inpatient data. At the end of life, cancer survivors often experience exacerbations of complex comorbidities requiring acute hospital care. Few studies consider comorbidity patterns in cancer survivors receiving palliative care.To identify patterns of comorbidities in cancer patients receiving palliative care and factors (...) with a 37% increased risk of in-hospital deaths in those presenting with more 'multiple comorbidities and symptoms', but with a 22% risk reduction in those presenting with 'more symptoms'.Identification of comorbidity patterns and risk factors for in-hospital deaths in cancer patients provides an avenue to further develop appropriate palliative care strategies aimed at improving outcomes in cancer survivors.

2019 Palliative Medicine

24. Developing efficient and effective behavioral treatment for insomnia in cancer survivors: Results of a stepped care trial. (PubMed)

Developing efficient and effective behavioral treatment for insomnia in cancer survivors: Results of a stepped care trial. Insomnia is common among cancer survivors. Although behavioral treatments for insomnia are effective, access is limited. Stepped care delivery models may provide insomnia treatment that is more efficient and accessible to cancer survivors.Fifty-one survivors (mean age, 55 years) with elevated Insomnia Severity Index (ISI) scores (≥12) first participated in Sleep Training (...) , but not demographic/health-related variables. Mood improved significantly following both STEP-1 and STEP-2 (P < .001).A stepped care approach to treating insomnia among cancer survivors has the potential to improve treatment accessibility. A sizable proportion of survivors can benefit from 2 different low-intensity approaches that could be delivered by nonsleep specialists. For individuals who require more intensive care, assessing treatment interest can identify those who are likely to engage.© 2019 American

2019 Cancer

25. Care delivery, patient experiences, and health outcomes among sexual and gender minority patients with cancer and survivors: A scoping review. (PubMed)

Care delivery, patient experiences, and health outcomes among sexual and gender minority patients with cancer and survivors: A scoping review. Sexual and gender minorities (SGMs) face a disproportionate burden of cancer, yet little is known about the experiences and specific needs of these underserved populations in cancer care delivery. The authors conducted a scoping review to characterize the literature on cancer care delivery, health outcomes, and health care experiences for patients (...) with cancer and survivors identifying as SGM. In total, 1176 peer-reviewed citations were identified after a systematic search of the PubMed/Medline, PsycInfo, Cumulative Index of Nursing and Allied Health Literature (CINAHL), and Web of Sciences databases without restriction on publication date. The details captured included study aims, design, population, cancer site, and main findings. Thirty-seven studies published from 1998 to 2017 met the study criteria. Most studies were conducted in the post

2019 Cancer

26. Models of Care for Survivors of Childhood Cancer From Across the Globe: Advancing Survivorship Care in the Next Decade. (PubMed)

Models of Care for Survivors of Childhood Cancer From Across the Globe: Advancing Survivorship Care in the Next Decade. With improvements in cancer treatment and supportive care, a growing population of survivors of childhood cancer at risk for significant and potentially life-threatening late effects has been identified. To provide a current snapshot of the models of care from countries with varying levels of resources and health care systems, stakeholders in childhood cancer survivorship (...) clinical care and research were identified from 18 countries across five continents. Stakeholders responded to a survey and provided a brief narrative regarding the current state of survivorship care. Findings indicate that among pediatric-age survivors of childhood cancer (allowing for differences in age cutoffs across countries), resources are generally available, and a large proportion of survivors are seen by a physician familiar with late effects in most countries. After survivors transition

2018 Journal of Clinical Oncology

27. Cardiovascular Preventive Care and Coordination Of Care In Prostate Cancer Survivors: A Multi-Institutional Prospective Study. (PubMed)

Cardiovascular Preventive Care and Coordination Of Care In Prostate Cancer Survivors: A Multi-Institutional Prospective Study. Prostate cancer survivors who receive androgen deprivation therapy (ADT) are at increased risk of cardiovascular disease. They require coordinated care between cancer specialists and primary care physicians to monitor for cancer control and manage cardiovascular risk factors.We prospectively enrolled 103 men receiving ADT with radiation therapy (RT) from 7 institutions (...) laboratory test values at 1 year showed 24% with inadequately controlled blood sugar and 22% elevated cholesterol. Patient perceptions about care coordination were relatively low. At 1 year, 57% reported that their primary care physicians "always know about the care I receive at other places," 67% reported that their cancer physician "communicated with other providers I see," and 65% reported that the cancer care physician "knows the results of my visits with other doctors."Patients with prostate cancer

2018 Biology and Physics

28. Carevive Survivor Care Planning System in Improving Quality of Life in Breast Cancer Survivors

Carevive Survivor Care Planning System in Improving Quality of Life in Breast Cancer Survivors Carevive Survivor Care Planning System in Improving Quality of Life in Breast Cancer Survivors - Full Text View - ClinicalTrials.gov Hide glossary Glossary Study record managers: refer to the if submitting registration or results information. Search for terms x × Study Record Detail Saved Studies Save this study Warning You have reached the maximum number of saved studies (100). Please remove one (...) or more studies before adding more. Carevive Survivor Care Planning System in Improving Quality of Life in Breast Cancer Survivors The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Read our for details. ClinicalTrials.gov Identifier: NCT03198286 Recruitment Status : Completed First Posted : June 26, 2017 Last Update Posted : February 21, 2018 Sponsor: Sidney

2017 Clinical Trials

29. Clinical Updates in Women's Health Care Summary: Gynecologic and Obstetric Care for Breast Cancer Survivors: Primary and Preventive Care Review. (PubMed)

Clinical Updates in Women's Health Care Summary: Gynecologic and Obstetric Care for Breast Cancer Survivors: Primary and Preventive Care Review. Breast cancer treatment has an impact on the physical, psychologic, sexual, and reproductive aspects of women's lives. Therefore, it is important for obstetrician-gynecologists to be well versed in the screening, diagnosis, and management of breast cancer. This monograph is an overview of critical issues related to the provision of ongoing care (...) to breast cancer survivors.

2017 Obstetrics and Gynecology

30. Satisfaction with cancer care, self-efficacy, and health-related quality of life in Latino cancer survivors. (PubMed)

Satisfaction with cancer care, self-efficacy, and health-related quality of life in Latino cancer survivors. The objective of the current study was to examine how modifiable factors such as satisfaction with cancer care and self-efficacy impact health-related quality of life (HRQOL) among Latino cancer survivors.Latinos previously diagnosed with breast, prostate, or colorectal cancer (N = 288) completed questionnaires (Patient Satisfaction with Cancer Care Scale, Stanford Chronic Disease Self (...) insurance, can be difficult to address. The findings of the current study emphasize the importance of self-efficacy within the context of patient-centered cancer care practices (eg, patient inclusion in care decisions, sufficient time with provider, ready access to medical advice) and suggest that improving satisfaction with care may increase patients' confidence in managing important aspects of their cancer experience and, in turn, improve HRQOL among Latino cancer survivors. Cancer 2018. © 2018

2018 Cancer

31. The BETTER WISE protocol: building on existing tools to improve cancer and chronic disease prevention and screening in primary care for wellness of cancer survivors and patients - a cluster randomized controlled trial embedded in a mixed methods design. (PubMed)

The BETTER WISE protocol: building on existing tools to improve cancer and chronic disease prevention and screening in primary care for wellness of cancer survivors and patients - a cluster randomized controlled trial embedded in a mixed methods design. There is a pressing need to reduce the burden of chronic disease and improve healthcare system sustainability through improved cancer and chronic disease prevention and screening (CCDPS) in primary care. We aim to create an integrated approach (...) that addresses the needs of the general population and the special concerns of cancer survivors. Building on previous research, we will develop, implement, and test the effectiveness of an approach that proactively targets patients to attend an individualized CCDPS intervention delivered by a Prevention Practitioner (PP). The objective is to determine if patients randomized to receive an individualized PP visit (vs standard care) have improved cancer surveillance and CCDPS outcomes. Implementation frameworks

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2018 BMC Cancer

32. Health information needs and preferences in relation to survivorship care plans of long-term cancer survivors in the American Cancer Society's Study of Cancer Survivors-I (PubMed)

Health information needs and preferences in relation to survivorship care plans of long-term cancer survivors in the American Cancer Society's Study of Cancer Survivors-I Survivorship care plans (SCPs) provide cancer patients and health care providers with a treatment summary and outline of recommended medical follow-up. Few studies have investigated the information needs and preferred sources among long-term cancer survivors.Cancer survivors of the ten most common cancers enrolled (...) in the longitudinal Study of Cancer Survivors-I (SCS-I) completed a survey 9 years post-diagnosis (n = 3138); at time of diagnosis of the SCS-I cohort, SCPs were not considered usual care. We assessed participants' current desire and preferred sources for information across ten SCP items and evaluated factors associated with information need 9 years after diagnosis.The proportion of long-term cancer survivors endorsing a need for cancer and health information 9 years post-diagnosis ranged from 43 % (cancer

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2016 Journal of cancer survivorship : research and practice

33. Treatment Summaries and Follow-Up Care Instructions for Cancer Survivors: Improving Survivor Self-Efficacy and Health Care Utilization (PubMed)

Treatment Summaries and Follow-Up Care Instructions for Cancer Survivors: Improving Survivor Self-Efficacy and Health Care Utilization Treatment summaries and follow-up care plan information should be provided to cancer survivors. This study examines the association of receiving summaries and care plans with cancer survivor self-efficacy for chronic illness management, and whether self-efficacy was associated with health care utilization.Four hundred forty-one cancer survivors (≥2 years from (...) diagnosis and had completed treatment) ≥65 years old from 12 cancer centers across 5 states completed telephone surveys. Survivors responded to three questions about receiving a written treatment summary, written follow-up plan, and an explanation of follow-up care plans. Respondents completed the Stanford Chronic Illness Management Self-Efficacy Scale and reported emergency room visits and hospitalizations in the past year. Three multiple linear regression models estimated the association of written

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2016 The oncologist

34. Extended Cancer Education for Longer-Term Survivors in Primary Care for Patients With Stage I-II Breast or Prostate Cancer or Stage I-III Colorectal Cancer

Extended Cancer Education for Longer-Term Survivors in Primary Care for Patients With Stage I-II Breast or Prostate Cancer or Stage I-III Colorectal Cancer Extended Cancer Education for Longer-Term Survivors in Primary Care for Patients With Stage I-II Breast or Prostate Cancer or Stage I-III Colorectal Cancer - Full Text View - ClinicalTrials.gov Hide glossary Glossary Study record managers: refer to the if submitting registration or results information. Search for terms x × Study Record (...) Detail Saved Studies Save this study Warning You have reached the maximum number of saved studies (100). Please remove one or more studies before adding more. Extended Cancer Education for Longer-Term Survivors in Primary Care for Patients With Stage I-II Breast or Prostate Cancer or Stage I-III Colorectal Cancer The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal

2017 Clinical Trials

35. Perceptions and Barriers of Survivorship Care in Asia: Perceptions From Asian Breast Cancer Survivors (PubMed)

Perceptions and Barriers of Survivorship Care in Asia: Perceptions From Asian Breast Cancer Survivors With the long-term goal to optimize post-treatment cancer care in Asia, we conducted a qualitative study to gather in-depth descriptions from multiethnic Asian breast cancer survivors on their perceptions and experiences of cancer survivorship and their perceived barriers to post-treatment follow-up.Twenty-four breast cancer survivors in Singapore participated in six structured focus group (...) as coping strategies. Survivors indicated lack of consultation time and fear of unplanned hospitalization as main barriers to optimal survivorship care. Furthermore, survivors indicated that they preferred receipt of survivorship care at the specialty cancer center.Budding survivorship programs in Asia must take survivor perspectives into consideration to ensure that survivorship care is fully optimized within the community.

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2016 Journal of global oncology

36. Gynecologic Issues in Children and Adolescent Cancer Patients and Survivors

Gynecologic Issues in Children and Adolescent Cancer Patients and Survivors ACOGCOMMITTEEOPINION Number 747 (Replaces Committee Opinion Number 607, August 2014) Committee on Adolescent Health Care This Committee Opinion was developed by the American College of Obstetricians and Gynecologists’ Committee on Adolescent Health Care in collaboration with committee members Erin A. Keyser, MD, and Sloane W. Berger-Chen, MD. Gynecologic Issues in Children and Adolescent Cancer Patients and Survivors (...) of fertility preservation is a rapidly evolving field; therefore, a referral to a health care provider with experience in oncofertility is recom- mended to explore the full range of available options. c Childhood cancer survivors who maintain fertility should be counseled about the health risks to off- spring in addition to potential pregnancy-related complications. VOL. 132, NO. 2, AUGUST 2018 OBSTETRICS & GYNECOLOGY e67c Approximately 75% of pediatric cancer survivors experience at least one late effect

2018 American College of Obstetricians and Gynecologists

37. Hypothalamic - Pituitary and Growth Disorders in Survivors of Childhood Cancer

Abstract Objective To formulate clinical practice guidelines for the endocrine treatment of hypothalamic–pituitary and growth disorders in survivors of childhood cancer. Participants An Endocrine Society–appointed guideline writing committee of six medical experts and a methodologist. Conclusions Due to remarkable improvements in childhood cancer treatment and supportive care during the past several decades, 5-year survival rates for childhood cancer currently are >80%. However, by virtue (...) are not childhood cancer survivors. Introduction Cancers are relatively rare in the pediatric age group and account for only ∼1% of the cancer burden in the entire population ( ). Due to improvements in treatment and supportive care, current 5-year survival rates are >80% overall ( ). The number of childhood cancers survivors is ever increasing and by the year 2020, it is estimated that there will be half a million survivors of childhood cancer residing in the United States. As the number of survivors has

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2018 The Endocrine Society

38. Long-term follow up guidelines for survivors of cancer

Long-term follow up guidelines for survivors of cancer Children's Oncology Group Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers **NEW** - Version 5.0 The Children’s Oncology Group Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers (COG LTFU Guidelines) are a resource for healthcare professionals who provide ongoing care to survivors of pediatric malignancies. The screening recommendations (...) in these guidelines are appropriate for asymptomatic survivors of childhood, adolescent, or young adult cancer presenting for routine exposure-based medical follow-up. More extensive evaluations are presumed, as clinically indicated, for survivors presenting with signs and symptoms suggesting illness or organ dysfunction. A basic knowledge of ongoing issues related to the long-term follow-up needs of this patient population is assumed. Healthcare professionals who do not regularly care for survivors of pediatric

2018 Pediatric Endocrine Society

39. Integrating primary care providers in the care of cancer survivors: gaps in evidence and future opportunities. (PubMed)

Integrating primary care providers in the care of cancer survivors: gaps in evidence and future opportunities. Since the release of the Institute of Medicine report: From cancer patient to cancer survivor: lost in transition, in 2005, there has been a national call in the USA to provide coordinated, comprehensive care for cancer survivors, with an emphasis on the role of primary care. Several models of care have been described, which focus on primary care providers (PCPs) as receiving cancer (...) survivors who are transferred after successful treatment, and who are given specific types of information from oncology-based care (eg, survivorship care plans), and not as active members of the cancer survivorship team. In this Series paper, we assessed survivorship models that have been described in the literature, with a specific focus on strategies that aim to integrate PCPs into the care of cancer survivors across different settings. We offer insights differentiating PCPs' level of expertise

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2017 Lancet Oncology

40. Follow-up Care for Survivors of Prostate Cancer - Clinical Management: a Program in Evidence-Based Care Systematic Review and Clinical Practice Guideline. (PubMed)

Follow-up Care for Survivors of Prostate Cancer - Clinical Management: a Program in Evidence-Based Care Systematic Review and Clinical Practice Guideline. This clinical practice guideline was developed to provide evidence-based guidance on the frequency by which prostate-specific antigen (PSA) levels should be tested in men after curative-intent treatment for prostate cancer and to define the most appropriate diagnostic testing if biochemical recurrence occurs.An electronic search using OVID (...) were included in the evidence base. All identified literature reported on diagnostic imaging properties of diagnostic tests following biochemical recurrence.Due to a lack of empirical research, few evidenced-based recommendations could be made with respect to a follow-up schedule of PSA testing for prostate cancer survivors following curative-intent treatment, or detailing diagnostic testing upon detection of biochemical recurrence. Accordingly, the GDG focused substantial effort on critical

2017 Clinical oncology (Royal College of Radiologists (Great Britain))

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