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Cancer Survivor Care

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1. Follow-Up Model of Care for Cancer Survivors: Recommendations for the Delivery of Follow-up Care for Cancer Survivors in Ontario

Follow-Up Model of Care for Cancer Survivors: Recommendations for the Delivery of Follow-up Care for Cancer Survivors in Ontario Follow-Up Model of Care for Cancer Survivors Recommendations for the Delivery of Follow-up Care for Cancer Survivors in Ontario March 2019 Acknowledgements Cancer Care Ontario would like to acknowledge the contribution and expertise of the following groups, committees, and organizations in the development of this document. Survivorship Care Improvement Project Models (...) Sussman, Chair, Survivorship Care Improvement Project Models of Care Working Group Hasmik Beglaryan, Manager, Models of Care, Cancer Care Ontario Ada Payne, Lead, Models of Care, Cancer Care Ontario Follow-Up Model of Care for Cancer Survivors 3 Content OVERVIEW 4 Background 4 Purpose of This Document 5 Approach 5 Scope 5 Definitions 5 Guiding Principles for Follow-Up Model of Care 6 RECOMMENDATIONS 6 Follow-Up Care Planning 6 Surveillance 8 Management of Consequences of Cancer 9 Prevention and Health

2019 Cancer Care Ontario

2. Perspectives on Conversations About Costs of Cancer Care of Breast Cancer Survivors and Cancer Center Staff: A Qualitative Study. (PubMed)

Perspectives on Conversations About Costs of Cancer Care of Breast Cancer Survivors and Cancer Center Staff: A Qualitative Study. Despite recommendations to discuss the cost of care (CoC) with patients with cancer, little formal guidance is available on how to conduct these sensitive conversations in ways that are acceptable to both patients and providers.To explore the perspectives of patients and medical and nonmedical cancer center staff on CoC conversations.In individual interviews (...) be compassionate, helpful, and knowledgeable of the patient's specific situation (for example, treatment plan, insurance coverage) and of the resources available to attain the patient's goals of care.Interviews were limited to older breast cancer survivors and staff at 1 institution.Conversations about CoC extend beyond discussing costs and must be sensitive to the vulnerability experienced by patients. These findings can guide training of personnel involved in CoC conversations.Robert Wood Johnson Foundation.

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2019 Annals of Internal Medicine

3. Survivors of cancer seeking care continuity and lengthier appointments

Survivors of cancer seeking care continuity and lengthier appointments HEAL TH EC ONOMICS RESEARCH UNIT Promoting Excellence in Health Economics HERU is supported by the Chief Scientist Office (CSO) of the Scottish Government Health & Social Care Directorates (SGHSC) Survivors of cancer seeking care continuity and lengthier appointments policy brief March 2017 Key Findings • Cancer survivors may accept non-consultant follow-up as long as they receive other benefits. • Care continuity (...) was sufficient compensation in most types of cancer, along with longer appointments, one-to-one counselling and dietary advice. • Given practicalities, costs, and the potential to develop continuous care, specialist nurse-led cancer follow-up may be attractive. • Preferences differed between survivors of different cancers. What problem was this research addressing? After completing their primary treatment, most patients with cancer enter structured cancer follow-up aimed at detecting cancer recurrence

2017 Health Economics Research Unit

4. Chinese translation of a measure of symptom burden, functional limitations, lifestyle, and health care-seeking skills in breast cancer survivors: the Cancer Survivor Profile. (PubMed)

Chinese translation of a measure of symptom burden, functional limitations, lifestyle, and health care-seeking skills in breast cancer survivors: the Cancer Survivor Profile. To produce a culturally sensitive Chinese translation of the original version of the Cancer Survivor Profile for breast cancer (CSPro-BC) survivors, which identifies problems in breast cancer patients post-primary treatment for breast cancer.Four hundred forty-four female Chinese patients following primary treatment (...) , lifestyle, and health care-seeking skills in Chinese-speaking breast cancer survivors is available for further testing.

2019 Journal of cancer survivorship : research and practice

5. Rationale and design of extended cancer education for longer term survivors (EXCELS): a randomized control trial of 'high touch' vs. 'high tech' cancer survivorship self-management tools in primary care. (PubMed)

Rationale and design of extended cancer education for longer term survivors (EXCELS): a randomized control trial of 'high touch' vs. 'high tech' cancer survivorship self-management tools in primary care. Breast, colorectal, and prostate cancer survivors are at increased risk for late and long-term effects post-treatment. The post-treatment phase of care is often poorly coordinated and survivors navigate follow-up care with minimal information or guidance from their healthcare team (...) . This manuscript describes the Extended Cancer Education for Longer-term Survivors (EXCELS) in Primary Care protocol. EXCELS is a randomized controlled trial to test the efficacy of patient-level self-management educational strategies on adherence to preventative health service use and cancer survivorship follow-up guidelines.The EXCELS trial compares four conditions: (1) EXCELS-website (e.g., a mobile-optimized technology platform); (2) EXCELS-health coaching; (3) EXCELS-website and health coaching; and (4

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2019 BMC Cancer

6. Effect of Population Socioeconomic and Health System Factors on Medical Care of Childhood Cancer Survivors: A Report from the Childhood Cancer Survivor Study (PubMed)

Effect of Population Socioeconomic and Health System Factors on Medical Care of Childhood Cancer Survivors: A Report from the Childhood Cancer Survivor Study To determine the independent contribution of population socioeconomic and health system factors on childhood cancer survivors' medical care and screening.7899 childhood cancer survivors in the United States and Canada enrolled in the Childhood Cancer Survivor Study (CCSS). Population-level factors were derived from U.S. Area Health (...) Resource File or 201 Canadian Census. Health service utilization and individual-level factors were self-reported. Multivariable logistic regression was used to calculate the effect of population factors on medical care (any care vs. no care; risk-based care vs. general care) and indicated echocardiogram or mammogram, adjusting for individual sociodemographic and health status.After adjusting for individual factors, population factors had a nominal impact on childhood cancer survivors' medical care

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2017 Journal of adolescent and young adult oncology

7. Do Perceived Needs Affect Willingness to Use Traditional Chinese Medicine for Survivorship Care Among Chinese Cancer Survivors? A Cross-Sectional Survey (PubMed)

Do Perceived Needs Affect Willingness to Use Traditional Chinese Medicine for Survivorship Care Among Chinese Cancer Survivors? A Cross-Sectional Survey Purpose We aimed to quantify Chinese cancer survivors' perceived needs for survivorship care and to evaluate whether these needs could impact their willingness to use traditional Chinese medicine (TCM). Methods We conducted a cross-sectional survey with members of the Beijing Anti-Cancer Association in China. We measured perceived needs (...) with the seven-item Brief Chinese Cancer Survivorship Needs Scale that assesses psychological, functional, nutritional, social, body image, pain, and symptom needs. The outcome variable was willingness to use TCM for survivorship care. We performed multivariable logistic regression analyses to evaluate whether perceived needs are associated with willingness. Results A total of 600 patients were invited, with a response rate of 81%. The mean (standard deviation) score of the perceived needs scale (0 to 10

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2017 Journal of global oncology

8. Transition from pediatric to adult follow-up care in childhood cancer survivors - a systematic review

Transition from pediatric to adult follow-up care in childhood cancer survivors - a systematic review Print | PDF PROSPERO This information has been provided by the named contact for this review. CRD has accepted this information in good faith and registered the review in PROSPERO. The registrant confirms that the information supplied for this submission is accurate and complete. CRD bears no responsibility or liability for the content of this registration record, any associated files

2019 PROSPERO

9. A realist review of self-management support interventions delivered in primary care to support cancer survivors to manage the long-term physical and psychosocial consequences of systemic anticancer therapies

A realist review of self-management support interventions delivered in primary care to support cancer survivors to manage the long-term physical and psychosocial consequences of systemic anticancer therapies Print | PDF PROSPERO This information has been provided by the named contact for this review. CRD has accepted this information in good faith and registered the review in PROSPERO. The registrant confirms that the information supplied for this submission is accurate and complete. CRD bears

2019 PROSPERO

10. Cardio-Oncology Rehabilitation to Manage Cardiovascular Outcomes in Cancer Patients and Survivors: A Scientific Statement From the American Heart Association

Cardio-Oncology Rehabilitation to Manage Cardiovascular Outcomes in Cancer Patients and Survivors: A Scientific Statement From the American Heart Association Cardio-Oncology Rehabilitation to Manage Cardiovascular Outcomes in Cancer Patients and Survivors: A Scientific Statement From the American Heart Association | Circulation Search Hello Guest! Login to your account Email Password Keep me logged in Search April 2019 April 2019 April 2019 April 2019 March 2019 March 2019 March 2019 March 2019 (...) March 2019 February 2019 February 2019 February 2019 February 2019 January 2019 January 2019 January 2019 January 2019 January 2019 This site uses cookies. By continuing to browse this site you are agreeing to our use of cookies. Free Access article Share on Jump to Free Access article Cardio-Oncology Rehabilitation to Manage Cardiovascular Outcomes in Cancer Patients and Survivors: A Scientific Statement From the American Heart Association , MD, MS, Chair , MD, PhD, Vice Chair , MD , PhD , PhD

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2019 American Heart Association

11. Evidence-based recommendations on care for breast cancer survivors for primary care providers: a review of evidence-based breast cancer guidelines. (PubMed)

Evidence-based recommendations on care for breast cancer survivors for primary care providers: a review of evidence-based breast cancer guidelines. To review evidence-based (EB) recommendations on survivorship care for primary care providers (PCPs) in EB breast cancer guidelines.Guidelines were collected via experts and via literature database, guideline database and cancer agency websites searches.EB guidelines in any language published between 2012 and 2017 were collected. EB recommendations (...) , peripheral neuropathy and lymphedema were reported in more than one guideline. Recurrence prevention was mentioned in four guidelines; all recommended physical activity.The number of EB recommendations in guidelines is limited. Moreover, recommendations differ between guidelines and most are based on low-quality evidence. More high-quality research is needed to develop and adapt guidelines to support PCPs in providing optimal breast cancer survivorship care.© Article author(s) (or their employer(s

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2017 BMJ open

12. Shared care involving cancer specialists and primary care providers – What do cancer survivors want? (PubMed)

Shared care involving cancer specialists and primary care providers – What do cancer survivors want? Cancer survivors are living longer, prompting greater focus on managing cancer as a chronic condition. Shared care between primary care providers (PCPs) and cancer specialists, involving explicit partnership in how care is communicated, could ensure effective transitions between services. However, little is known about cancer patients' and survivors' preferences regarding shared care.To (...) explore Australian cancer survivors' views on shared care: what cancer survivors need from shared care; enablers and barriers to advancing shared care; and what successful shared care looks like.Community forum held in Adelaide, Australia, in 2015 with 21 participants: 11 cancer survivors, 2 family caregivers, and 8 clinicians and researchers (members of PC4-Primary Care Collaborative Cancer Clinical Trials Group).Qualitative data from group discussion of the objectives.Participants stressed

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2017 Health expectations : an international journal of public participation in health care and health policy

13. Design of a randomized controlled trial on the efficacy of a reproductive health survivorship care plan in young breast cancer survivors. (PubMed)

Design of a randomized controlled trial on the efficacy of a reproductive health survivorship care plan in young breast cancer survivors. Young breast cancer survivors (YBCS) have unmet needs for managing hot flashes, fertility-related concerns, sexual health, and contraception.Describe the design and participant characteristics of a randomized controlled trial testing the efficacy of the survivorship care plan on reproductive health (SCP-R) intervention on improving hot flashes, fertility (...) YBCS nominated one healthcare provider (HCP), who can access the same materials as their patient. HCP outcomes are preparedness and confidence in discussing each issue.Among 318 YBCS screened, 57.2% underwent randomization. Mean age was 40.0 (SD 5.9), and mean age at cancer diagnosis was 35.6 (SD 5.4). Significant hot flashes, fertility-related concerns, vaginal symptoms, and inadequate contraception were reported by 50.5%, 50%, 46.7%, 62.1% of YBCS, respectively; 70.9% had multiple issues. Among

2019 Contemporary clinical trials

14. Impact of Survivorship Care on Young Adult Survivors of Childhood Cancer With Post-Traumatic Stress Symptoms. (PubMed)

Impact of Survivorship Care on Young Adult Survivors of Childhood Cancer With Post-Traumatic Stress Symptoms. To assess post-traumatic stress symptoms (PTSSs) in young adult survivors of childhood cancer not receiving survivorship care and to determine whether attending a survivorship-focused healthcare visit was associated with changes in PTSSs.44 young adult survivors from the Yale Cancer Center in Connecticut without prior survivorship clinic attendance.As part of a larger trial (...) care should be encouraged by nurses in healthcare settings that do not specialize in caring for long-term survivors. Nurses should facilitate screening for PTSSs and promote interventions among survivors completing cancer therapy to help them transition to survivorship care.

2019 Oncology nursing forum

15. Personalized Risk-Stratified Cancer Follow-Up Care: Its Potential for Healthier Survivors, Happier Clinicians, and Lower Costs. (PubMed)

Personalized Risk-Stratified Cancer Follow-Up Care: Its Potential for Healthier Survivors, Happier Clinicians, and Lower Costs. The growth in the number of cancer survivors in the face of projected health-care workforce shortages will challenge the US health-care system in delivering follow-up care. New methods of delivering follow-up care are needed that address the ongoing needs of survivors without overwhelming already overflowing oncology clinics or shuttling all follow-up patients (...) to primary care providers. One potential solution, proposed for over a decade, lies in adopting a personalized approach to care in which survivors are triaged or risk-stratified to distinct care pathways based on the complexity of their needs and the types of providers their care requires. Although other approaches may emerge, we advocate for development, testing, and implementation of a risk-stratified approach as a means to address this problem. This commentary reviews what is needed to shift to a risk

2019 Journal of the National Cancer Institute

16. Financial hardship and quality of life among African American and white cancer survivors: The role of limiting care due to cost. (PubMed)

Financial hardship and quality of life among African American and white cancer survivors: The role of limiting care due to cost. Financial hardship is common among cancer survivors and is associated with both limiting care due to cost and with poor health-related quality of life (HRQOL). The present study estimates the association between limiting care due to cost and HRQOL in a diverse population of cancer survivors and tests whether limiting care mediates the association between financial (...) hardship and HRQOL.We used data from 988 participants (579 African American, 409 white) in the Detroit Research on Cancer Survivors (ROCS) pilot, a hospital-based cohort of breast, colorectal, lung, and prostate cancer survivors. We assessed associations between financial hardship, limiting care, and HRQOL (measured by the FACT-G) using linear regression and mediation analysis controlling for demographic, socioeconomic, and cancer-related variables.FACT-G scores were 4.2 (95% CI: 2.0, 6.4) points lower

2019 Cancer Epidemiology & Biomarkers and Prevention

17. Models of Care for Survivors of Childhood Cancer From Across the Globe: Advancing Survivorship Care in the Next Decade. (PubMed)

Models of Care for Survivors of Childhood Cancer From Across the Globe: Advancing Survivorship Care in the Next Decade. With improvements in cancer treatment and supportive care, a growing population of survivors of childhood cancer at risk for significant and potentially life-threatening late effects has been identified. To provide a current snapshot of the models of care from countries with varying levels of resources and health care systems, stakeholders in childhood cancer survivorship (...) clinical care and research were identified from 18 countries across five continents. Stakeholders responded to a survey and provided a brief narrative regarding the current state of survivorship care. Findings indicate that among pediatric-age survivors of childhood cancer (allowing for differences in age cutoffs across countries), resources are generally available, and a large proportion of survivors are seen by a physician familiar with late effects in most countries. After survivors transition

2018 Journal of Clinical Oncology

18. Cardiovascular Preventive Care and Coordination Of Care In Prostate Cancer Survivors: A Multi-Institutional Prospective Study. (PubMed)

Cardiovascular Preventive Care and Coordination Of Care In Prostate Cancer Survivors: A Multi-Institutional Prospective Study. Prostate cancer survivors who receive androgen deprivation therapy (ADT) are at increased risk of cardiovascular disease. They require coordinated care between cancer specialists and primary care physicians to monitor for cancer control and manage cardiovascular risk factors.We prospectively enrolled 103 men receiving ADT with radiation therapy (RT) from 7 institutions (...) laboratory test values at 1 year showed 24% with inadequately controlled blood sugar and 22% elevated cholesterol. Patient perceptions about care coordination were relatively low. At 1 year, 57% reported that their primary care physicians "always know about the care I receive at other places," 67% reported that their cancer physician "communicated with other providers I see," and 65% reported that the cancer care physician "knows the results of my visits with other doctors."Patients with prostate cancer

2018 Biology and Physics

19. Carevive Survivor Care Planning System in Improving Quality of Life in Breast Cancer Survivors

Carevive Survivor Care Planning System in Improving Quality of Life in Breast Cancer Survivors Carevive Survivor Care Planning System in Improving Quality of Life in Breast Cancer Survivors - Full Text View - ClinicalTrials.gov Hide glossary Glossary Study record managers: refer to the if submitting registration or results information. Search for terms x × Study Record Detail Saved Studies Save this study Warning You have reached the maximum number of saved studies (100). Please remove one (...) or more studies before adding more. Carevive Survivor Care Planning System in Improving Quality of Life in Breast Cancer Survivors The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Read our for details. ClinicalTrials.gov Identifier: NCT03198286 Recruitment Status : Completed First Posted : June 26, 2017 Last Update Posted : February 21, 2018 Sponsor: Sidney

2017 Clinical Trials

20. Clinical Updates in Women's Health Care Summary: Gynecologic and Obstetric Care for Breast Cancer Survivors: Primary and Preventive Care Review. (PubMed)

Clinical Updates in Women's Health Care Summary: Gynecologic and Obstetric Care for Breast Cancer Survivors: Primary and Preventive Care Review. Breast cancer treatment has an impact on the physical, psychologic, sexual, and reproductive aspects of women's lives. Therefore, it is important for obstetrician-gynecologists to be well versed in the screening, diagnosis, and management of breast cancer. This monograph is an overview of critical issues related to the provision of ongoing care (...) to breast cancer survivors.

2017 Obstetrics and Gynecology

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